How are we all doing ?

Jane, as before multiple buttons, 'sad' plus 'hug' your heart and faulty bags, and no-show viewer. We need a 'hope' button too, that's for the sale and the nice house to view. And 'love' for your successful recycling.

Thanks Denby,I am pleased about the recycling because I had so many notes.I’m sorting through the muscle disease genealogy notes today.I found one family with limb girdle muscular dystrophy and another with a different type and they have an ancestor in common as two sisters married into the families.It’s been over 20 years of research so far but I’ve never lost interest in it.Mum was passionate about her interests too so I suppose I get that enthusiasm from her.Jane x

That's great info thanks Rily, xx

My GP offered a choice of SS, Boots and a local Hospital (over 5 years ago after the original supplier, a private diagnostics Co, lost the contract - they were excellent so it was a pity). I find SS reasonable but very stingy with replacement batteries - one used to get 12 months worth, now it's only 2 months. I asked if that was because of my age but they said not! Mustn't grumble at least they're free. And the aids themselves are quite high quality. Not worth paying privately for ones that are only a little better for £3k each.

I have expensive ones & think they're brilliant. Whether they are really worth the extra cost seems uncertain. I know a few people with NHS aids who complain that everything is too loud if they turn them up, that they need to adjust volume in different environments, or simply still don't seem to hear very well. The trouble is, there don't seem to be enough reports from anyone who has tried both to compare! 

The first company I used were interesting - the audiologist told me the NHS aids were as good as the second best private aids. (Fewer bells and whistles I think). Seemed good enough to me.

If people are having the problems you mention they need to go back to wherever they got them and work it out. They fix the basic volume at the start but can often adjust that and there are volume controls on most aids as well. I guess it depends where they are using them. My husband got some, couldn't be bothered to wear them long enough to get accustomed and stopped trying.

My cousin got her private aids soaked in a rainstorm and was told she would have to pay to replace them - that's how I know they were £6k,  another friend went swimming and forgot to remove her NHS  aids but paid only a nominal sum for replacements.

I even had some small, totally in-ear aids once on the NHS but sadly they stopped them as people kept losing them. Mine were fine but then they changed the contract so back to the behind the ear ones.

They're working well for Wimbledon anyway.

All the best, 

Latestart

Hi all.

Just checking in, I've been a bit busy recently, but ok.

Hi Ian,It’s getting hotter here.Do you have any sea dips planned ? Love Jane x

Interesting day. I had a consultation at the Royal Free four weeks ago and have been waiting for a kidney biopsy. I approached PALS at UCH to find out what was going on, as the Consultant I spoke to wanted to do the biopsy at UCH. I was informed that my query might take 10 days (last week). Sent a reminder today, no reply. I contacted PALS at Royal Free about an hour later and within two hours had an appointment for a pre op on Monday at UCH

Jeez, what a contrast between the two. I have to admit that I've had previous issues PALS and admin at UCH.

Hi

Went today 9 jul