Can't get to feeling good.,

Hello and welcome to the group. Sorry you are not feeling too good at the moment, but the way you are feeling is not unusual following a TURBT. We get many aches and pains and usually overthink them. Having a catheter and stent in for so long will not have helped. They can irritate and inflame the plumbing causing discomfort. We are not medics, so can't give you a specific answer. One thing to rule out is infection which can be caused by catheters, so it may be a good idea to drop a sample off at your GP for testing. In the meantime general advice would be to make sure you are drinking plenty of water to keep things flushed out and to stay hydrated. Do you know what sort of chemo you will be having ? Best wishes.

Thanks for the reply. The chemo they will be giving will be thru a catheter. Specific problem I'm having right now is rectum burning/discomfort. The surgeon said to talk to a gastroenterologist, so I got a colonoscopy, nothing wrong, the gastroenterologist said talk to the surgeon. Perhaps the bladder hasn't healed yet and is throwing pain into the rectum, causing distress, lack of appetite, a general really lousy feeling. My regular doctor thinks it might be mental, wants me to see a psychiatrist.

Hi Pressone, sorry to hear about the discomfort you are feeling. I haven't experienced too many catheters but I've certainly read many descriptions of the horrible effects felt by others on this site. As Rily said the possibility of an infection needs to checked, as urinary infections can feel ghastly and knock back your general health. The old mantra "drink, drink, drink" is my fallback whenever I'm feeling less than marvellous. Obviously in those circumstances we mean flushing out  with water/squash not alcohol despite our enthusiasm to raise glasses whenever one of us gets an all clear!  I've been having doses of BCG for past two years and the after the last 3 doses I felt my immune system had taken a real kicking. I had an 8 week cough/cold virus, a dry skin rash, and reoccurences of gum infections. I felt tired every morning when I woke up, lost my appetite, lost a bit of weight (possibly no bad thing!) I'm climbing out of the hole but it is depressing never to feel bright and healthy so you have my sympathy. I think once the mornings get a bit lighter things will improve for me. Hoping something will help you feel better soon. x

Thanks, Herothedog for your input. Over the past 2 1/2 months I've been under anesthesia 3 times and had 3 rounds of antibiotics. Perhaps that might have something to do with it. Just wanting to get back to life and feel like working.

Hi Pressone, put like that, personally, I think 3 each gen anaesthetic and antibiotics have everything to do with it. Again personally, I would be looking at such things, only with your pharmacist's blessing as ever, as gut friendly bacteria capsules, supplements that can help detox remnants of the anaesthetics, good quality general multivitamin and mineral supplements [best taken with your main meal]. If you can afford it, organic food will not be dumping additional toxic pesticide residues in your poor battered system either.

Hope you feel better soon, 

Denby

Thanks so much for your advice. Will be taken seriously.

Hello Pressone

We all go through a dark period during diagnosis and treatment, it's quite normal. I found that walking near water, getting out in the occasional sunny days in winter and doing the things I really enjoyed seemed to lift my mood.

Also, I gave up alcohol, caffeine and processed food (except bacon) to give my system a rest and ate a lot of home made soup using whatever was in the bottom of the fridge. A teaspoon of curry sauce can liven up the dullest of soups.

I hope you feel better soon. You will get through this, it just takes a bit of time.

CB

Thanks, CB, I'll try to be patient.

7-2-20 An update, I did get to feeling better and better, slowly to be sure. Main problem I've had is bowel pressure causing a burning sensation like someone stuffed a baseball soaked in tabasco sauce up my rear end. Surgeon assured me this was the bladder, same nerves. It sure messed me up for awhile. Surgeon also had said the bladder will heal in 3 months, yet after 6 months it wasn't there yet. I am very thankful to God that I'm back to feeling almost normal now. I've had a lot of people praying for me. Hope this helps someone.

Hi Pressone. Good to know you are back to something like normality. It can take longer for some more than others to recover, but nice to hear you are feeling better. Best wishes.