Just diagnosed and about to have treatment

Hello and welcome to the group, although sorry you find yourself here. We know what a shock it is being told you have cancer and many of us have been there. Firstly be aware that bc can be treated successfully. You say cat 3 which is a bit ambiguous. We get to know a stage and grade. If you could give us a bit of background as to what procedures you have had so far, we will be able to help and support you going forward. Please ask any questions you like. Best wishes.

Hello Herdwicksheep, so sorry to hear you got this frightening news. Everyone on here has been given a bladder cancer diagnosis so we know that horrible feeling of shock and disbelief. The great thing is that there are many different treatments to throw at our disease depending on what is right for you. Have your team recommended a particular route yet? And do you have a Clinical Nurse Specialist yet? If you get a good CNS they can be your best friend, because they are specially trained to know everything about BC and to support the individual patient. 

I love your group name...I have two Lincoln Longwool sheep I am very fond of, but as you can see I chose my group name after my dog. Best wishes 

Hello, and thanks for replying.

Clinically my problem  is a T2aG3N2 urothelial cancer.

i had a cystosocpy on 6/11/19

I am having a TUBRT on Monday.

I think the plan is to remove as much of the tumor as possible, and thereafter have chemotherapy and radiology. 

it really has turned my world upside down and I'm pretty distressed

Michael

Diagnosis is always a bombshell, especially if you've had minimal symptoms & probably feel well otherwise. At least it has been detected & treatment plan in place. Hope you won't find it too gruelling - worth contacting any local cancer support groups to see what they have to offer. Come & chat here any time you need.

Thank you

Hello Michael, just to say while I am the patient's wife rather than the patient I do have a bit of understanding of how you feel. There's never a good time to get such news. So just want to send you a virtual hug and echo the comments from others, keep posting and you will keep receiving encouragement. I can vouch for that after 18 months of this unexpected detour on life's journey. Unfortunately we haven't had a great rapport with our CNS until recently, but the forum has provided a very good substitute.

Usual suggestions to give yourself back a bit of control and well- being include super-healthy eating mixed with treats. Reactions to the TURBT vary but as it will create a wound or wounds where tumours are removed, take it easy for several weeks. [Eg not too much lifting/vigorous exercise]. Expect some blood  in your urine for a day or two, then clear, then more days later as scabs come away. Drinking plenty of water or squash [lemon barley is good] helps to flush things through.

Don't forget we are all on your side, 

Denby

Thank you Denby.

This sort of thing is very helpful in a horrid time.

We’re all here for you Herdwicksheep, hope all goes well on Monday.

Luce x

Thank you again

Best wishes for you, it is an awful shock at first, but you can gain so much help and info off here and it is a great comfort. 

When I had my TURBT, I was discharged same day with a catheter in, followed up by nurse visits to fist remove catheter and then replace it as I couldn't pee, called Retention I believe. A week later all was well and catheter out.

Try not to fret, easier said than done I know, but we have all been there.