I was just wondering if anyone who has had surgery and ileal conduit, stoma .
I'm 5 weeks after surgery and sometimes when sitting I can feel my kidneys it a kind of gentle pulsing.
I have another 2 weeks before I see my consultant. So maybe someone can help?
Hi
I've just popped in from the stoma support group as I noticed your post.
I can't see anything obvious that would cause you to feel your kidneys gently pushing unless it's down to them settling themselves back into your body.
I take it you are not experiencing any side effects like a UTI or reduced output that could be causing the pushing feeling (I am not a medic, so unable to make a diagnosis)
As your consultant appointments is not for another 2 weeks can I suggest that you contact your stoma care nurse for advice or contact the stoma nurses at the hospital if they are different from your normal stoma nurse.
You are also able to ask this question on our Ask a Nurse page and one of the specialist nurses will give you some advice based on the information you give them but they will be unable to diagnose the problem.
If you need to speak to a nurse urgently you can speak to one of the Macmillan specialist nurses on 0808 808 0000 any day between 8 am and 8 pm.
Sorry I can't help further but do hope the nurses will be able to give you some peace of mind.
If you would be so kind as to keep us informed how you get on with the problem.
Keep in touch.
Ian
Ileostomy, colostomy, urostomy and any other stoma support group
Hello Mockingbird
I had a similar experience in my right kidney about 3 weeks after surgery. After yet another CT scan, the cause was deemed to be scar tissue at the end of the ureter where it joins the conduit restricting the flow of urine so it backed up and made the kidney swell. There's a medical term (neph-something) for this condition that I forget the name of right now but I blame the chemo for my memory loss.
In my case it corrected itself without further surgery. I recommend you phone your consultants secretary for an earlier appointment if you are concerned.
CB
Thanks for that CB .
I've got a date for CT on the 11th.
It's not painful or bothersome so hope its nothing.
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