So here I am home again without needing to stay overnight after rigid cystoscopy and a biopsy taken on Wednesday. There were very many scattered titchy recurrences which they have left until the biopsy results are available. Apparently these little nasties are so tiny and so numerous they decided not to risk puncturing bladder with an all out attack. I was disappointed they didn't cauterise but hey they are the doctors. Since only one very small tumour removed and marvellous anaesthetist avoided using gasses during procedure I felt very well again after my cuppa and toast and was sent home for a decent nights sleep in my own bed. Now await the biopsy results and the teams feedback on the next steps. Obviously not great to know I still have a bladder full of small cancers but I'm sticking with taking one day at a time. I was out gardening yesterday afternoon in gorgeous sunshine, and today my grand daughter and I have been collecting poo samples from sheep and goats for the vet to test for worms (perfect activity for a 6 year old!) Little things please little minds. x
Hi H. Sounds like a bit of a mixed result. Glad to got through it ok. Love the sound of your new hobby and it is always great to spend time with the grandkids. Put your feet up for a few days to recover. Best wishes.
That is dreadful Foxbrush! I thought NHS tea was obligatory post-treatment. How on earth could you be expected to recover without a cuppa? xxx
Hey H great to know that you’re up & well so soon! All the best with the biopsies x I feel such a fraud as I’m rolling around moaning & all fuzzy headed for the the first week or two
What no tea Foxbrush, water maybe? I’m lucky enough to get both, sometimes it’s toast other times they say they’re not allowed to make toast & I get a sandwich. Not sure what that’s all about but I’m grateful all the same. When they did the procedure st my local hospital we got biscuits & cake too!
Exactly. Plus, I brought my own sandwich as I'm diabetic.
Thanks Rily and everyone. Really appreciate your support. My daughter and grand daughter are off home tomorrow and I plan to spend rest of weekend in front of netflix as a distraction from biopsy-angst. In case anyone is interested...feedback from vet.....perfect sheep, very wormy goats. xxx
Thanks for crossed fingers Lugsy. No treatment at all this time they just took a biopsy. I have wondered about mitomycin but my team previously said BCG would be more effective. Balmy autumn weather here on edge of exmoor today. xxx
Fascinated to know how teams reckon to know whether BCG will be "more effective" or Mitomycin, Given my husband's experience, when at the beginning we would have taken whichever they suggested first and it was BCG but for him it didn't work whereas even cold Mitomycin apparently did. I say apparently because I suppose even though one more new tumour had grown after 6 BCG and none after 6 Mitomycin, maybe the BCG had had some positive effect, and one person isn't statistically significant etc etc..... The thing is, is anyone researching how to decide by using some kind of objective test or assessment which it's best to try first for each person? Because knowing would save *delay in nobbling the cancer *costs of staff time and materials to the NHS *and much misery to patients and their ever-faithful driver/carers [Yay for all of us out here!]
Info anyone?
Denby
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