Catheterisation?

Hi Potter100 . As you probably know, some of us have followed your posts over the last few years. Hopefully it will go well for you tomorrow. You know you will wake up with a catheter, but if it has to stay in depends on whether they think there may be the possibility of a blockage. I guess you know this already. As regards medication, I think the best people to ask are your medics tomorrow. People can offer their own experiences, but would it would not be right to recommend anything. Again, Best wishes for tomorrow. Keep us updated.

Hi Potter100,Best wishes for your procedure.I hope that your recovery is as pain free as possible.

Love Jane xx

With everyone else in wishing you an ideal recovery.

Re the catheters, everyone is different so the following may or may not be relevant to you and obviously by now you've had the op: One thing I've never seen mentioned on here which happens to my husband consistently is "bypassing" Ie, urine leaks out around the catheter. Messy and annoying. Last time as a result the nurse went to ask the doc within an hour or two max of him coming out of theatre, and they just removed it on the spot. He came home shortly afterwards same day as planned and has not had any trouble emptying, just the usual urgency/frequency/traces of blood all subsiding reasonably quickly over the next few days. This despite the fact that he is described as having strictures in the urethra which they have to force or cut wider under the anaesthetic to get the instruments in every time. Anyway if anyone else reading has had the same, at least now you know you're not alone...

Keep us posted as you're able,

best,

Denby

Hi rily,

        Operation went well. No need for catheterisation. Biopsy and diathermy carried out over a much smaller site than last time. Urine returned to normal colour after 12 hours and no throat issues afterwards so happy bunny at this point. Urologist conducting operation surprised me as he pointed out that the site was at the top near ureter. Nurse said it was bottom close to urethra. Urologist talked about weeds returning in a garden as an analogy of what he was doing. He’d seen the immunotherapy had supposedly failed but was confused that I’d not had maintenance immunotherapy before I had the cystocopy. In other words I’d had six weeks and according him the protocol was that the cystocopy followed maintenance. I mentioned that the chief consultant who I respect very much had intimated I might need radical surgery to which he replied woah let’s see the histology first. The current waiting time for this is 4-6 weeks. Any thoughts to my possible options as I would like to keep my bladder if possible? Thanks in advance. 

Hi Denby,

               gone through all of that. Can identify with all that you say there. I was keen to ask pertinent questions in advance. As luck had it I required no catheterisation whatsoever. I was concerned about blockage as I’ve felt the excruciating consequences of this too. Urologist felt confident he could do it without catheterisation. As a consequence I have no urethra pain or incontinence. I know every situation is different and there will be occasions when catheterisation is absolutely necessary but asking the question in advance is a no brainer for me now.

Hi Denby,

               gone through all of that. Can identify with all that you say there. I was keen to ask pertinent questions in advance. As luck had it I required no catheterisation whatsoever. I was concerned about blockage as I’ve felt the excruciating consequences of this too. Urologist felt confident he could do it without catheterisation. As a consequence I have no urethra pain or incontinence. I know every situation is different and there will be occasions when catheterisation is absolutely necessary but asking the question in advance is a no brainer for me now.

Hi Potter100. Good to know things went well and you are feeling OK. Although I have never experienced BCG, I know some people prefer to keep up with the treatments in order to preserve  their bladders. it is a matter of personal choice. It is another wait at the moment for results and then see where that takes you. Best wishes.