Still waiting on results after my TURBT

Hello FiM, the waiting for results is often the hardest part of the journey. Have you tried contacting the Urology department at the hospital and asking for the consultants secretary or for any CNS. Worth a try. Good luck and I hope you get your results soon.

Thank you for your help I was thinking to maybe call but didn’t want to be a bother but I  will call them today

Good luck phoning.I have found emailing  helpful too.The address is usually on the hospital letters.Love Jane x

I found oncologist secretary a marvel. Sorted out one of my problems within an hour.

I’m so sorry. Worrying disturbs my sleep so much at the beginning of this rocky road I went to my GP and she prescribed an antidepressant. Took it and it did help the sleeping tho o was still anxious during the day! Would you consider speaking to your gp about how you are feeling. You are not being a bother. You are trying to get through very difficult days. Sending love xx

Hi FiM,

I know it sounds like it's taking forever, but this seems to be around the usual wait. I had my TURBT in July 2022 and met the specialist in late August. At the time I had no idea what they would tell me as I had no feedback on the day of the TURBT (my tunour also could not all be removed during that).  I now know that first the pathology people had to check the tissue removed and then the Multidisciplinary meeting (MDT) had to review that plus the cystoscopy and CT scan info before agreeing the plan for treatment. In my hospital the MDT seems to happen on Fridays.

There are shortages all around the country of pathologists and the  radiologists who review CT scans and MRIs. In my hospital they schedule  review meetings 4-6 weeks after  scans to ensure they see the reports before talking to patients.

Yes it would be better if these stages could be done more quickly, and I think they are trying to improve the waits, but, even as things are,  treatments are started as soon as possible and the results appear to be reasonable. 

After the TURBT surgeon told me I had cancer she introduced me to her CNS and said she would be referring  me to the oncologist to discuss the chemo stage and the robotic surgeons to discuss the cystectomy. I met other  CNSs from each of those sections, both of whom became great supports to me during treatment.

That's when things sped up considerably and everybody piled in:  there were lots of face to face appointments, plus phone calls with various specialists including physios to make sure I kept as fit as possible and would get through all of this and have a good quality of life.

I think you'll find that things will start moving before too long. And you will be as busy as I was.

It won't help if you are too worried to sleep. If you can, it helps if you can understand the process and try to take each day as it comes. I'm sure your team are as keen as mine were to make sure you get the treatment you need as soon as they can do it.

If you read my bio you'll see that I have been clear now for 3.5 years and living a good life.

All the best,

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