BCG therapy

Hi Kenzie,

Hope your BCG journey goes with any issues.

Lot's of people complete the course, lot's don't but you only generally hear about the bad side effects on forum's of course.

I got too 18 instillations and don't regret doing the BCG treatments.

Keeping my finger's crossed for you also.

Trevor 

What side effects did you experience? 

Good luck with your BCG Instillations. I had a total of fifteen instillations with minimal amount of discomfort. Procedures is straightforward and painless.

The first 12 very little other than urgency and tiredness.

Tiredness mainly before I was up during the night weeing.

Started getting a little worse as things went on and then extreme bladder inflammation that caused a few issues and went on for a lot longer (months) so couldn't really function.

Don't let my experience put you off, nearly 4 year's since being diagnosed and no reoccurrence (touch wood)

That’s wonderful. I wish you many more years. And, your experience has not put me off. I like to know every detail good and bad. That way I am informed and prepared. 

Thank-you. So not a difficult  experience for all of us. It’s a lottery. I get that now. There are winners and losers. 

Hi Kenzie, 

my experience was pretty much the same as BFGs, but like him I wouldn’t change a thing…I hope your journey is a smooth successful one…

for all the ups and down on my journey I’m still all clear 2 and a half years in…long May it continual…

Nigel xx 

Well that’s the important thing. Still clear after 2 amd a half years. We can suffer a bit discomfort (says she that has not been there yet ) for extended life. I hope in 2 and a half years time I am answering posts as you are. All the best and lots more years to you. 

Thank you Kenzie, as I’m sure you already know, this forum is gold dust…ask anything, 

Nigel xx