Consultant update

Very similar to my story. Takes a while for GP’s to think beyond prostate and handing out Tamsulosin.

I’m just over 2 years on from cystoprostectomy, just had the all clear from 2 year scan. Almost 80 now and very fit and active.

Good luck wth the rest of your recovery. Mine was robot assisted which I’m told leads to faster recovery but was back to (new) normal in about 3 months.

Excellent news.Best wishes for your ongoing recovery.Best wishes Jane 

Wow,that is a quick recovery.Although I was back to work after 8 months it took over a year to recover really.I was desperately ill at the time of the op though.I had a mixture of robotic/general surgery.I’m glad to read you have done so well.Best wishes Jane 

Thanks Jane, I know I’ve been one of the lucky ones and the more stories I read on this forum  tthe more I realise this is the case.
There might be a little more to it though. In 2016 I had open heart surgery and the surgeon gave me a target of walking 3 miles a day by the time I went for follow up checks. I made it ,just, which turned out to be 4 months post op. Being retired with time to spare I just continued and now walk for an hour all weathers before lunch each day.I’m a bit slower than I was but having my little fitness regime and a daily routine has been a great help in twice recovering from major surgery.

Ace news, welcome to the “clearvafter RC club”

Thanks Leo

Brilliant news NellS26. Thank you for letting us know. I read your profile. You have had a very unpleasant set of symptoms which ultimately led to the radical cystoprostatectomy - not much time to think after the flexible cystoscopy at the beginning of 2026!!  Best wishes for a smooth path to full recovery.  Ray

Thank you Ray 

Hi Neil,I was interested to read your profile as our symptoms were alike and I also had Squamous cell.Best wishes for your recovery.Jane 

Thanks Jane, it all happened so quickly I couldn't get my head around it all. My consultant was excellent and my cancer nurses also. I've been very lucky that it was caught so quickly. I just need to find a decent urostomy bag, which I think I have and then I can start to move forward