Hi all
Sorry I haven't been on for a while , I took a turn for the worse.
Was heading towards my radiotherapy and suddenly ,on a Sunday morning I had a rectal bleed and collapsed. Had to be blue lighted to New Cross and into resuscitation.
My bowel had become infected and distended and there was all manner of things going wrong. My leg left blew up like a balloon that started about a month before. 3 times the size of my right leg. They said the cancer was causing the lymph nodes not to work and fluid was pooling . They then discovered anDVT in it as well.
The cancer pain and the nerve pain are too much to bare.they put a stent and net in my neck under local and a drain into my groin to drain fluid from the abcess they found in the pelvis. I will never have that done again ,I screamed and screamed at the pain ,having drains inserted into such a swollen leg
It kept getting worse infection temperature, they took me down to theatre and cleaned all of my abdomen out it was full of poo and pus and blood.
I've ended up with a stoma now and well as my illuit conduit bag for pee. The surgery scar was from my sternum to my pubic bone, must be 60 staples
.. I was in intensive care for a couple of days and had 5 bags of blood infused. Again the pain from the swollen leg is horrific. I went in to hospital on the 11th January and was discharged on the 14th February!!
Now I can't walk, I can barley stand with out a frame and help. They tell me radiotherapy will take the swelling down ,hospital have moved the date forward to the 2ndMarch ,I have a wheelchair sorted for me to get there.
Im doing bed exercises and trying to massage the leg but the pain .I can say it can bring me to my knees no problem.
Anyone got any ideas how I can help getting this leg down in size ? I am really frightened I won't walk again
The leg is huge i can't lift it with the muscles there. It's so painful to touch and i can't feel it ,but I can feel the pressure and pain , that I can feel
Now that's its secondary cancer ,has anyone been through similar?
Kerry x
