Can anyone help with terminology please?

TCC is transitional cell carcinoma and yours is rated as grade 2 but it's more likely to recurr or advance that is where the high grade comments comes from I think. 

pTa the p means pathology Ta is the tumour grading aka confined to the bladder lining not muscle invasive. 

So yes looks like they had to cut deeper down close to the muscle by the way that reads to me. But the tumour was not into the muscle just they had to resect quite deep. 

So yours  was a TCC lesion mine was a papilary type tree if you like. So both whilst siinlar are also somewhat different yet both obstructed our ureteric orrifice. 

Either way you will be under regular checks and things like that for the foreseeable  

Hi AnthonyS . Firstly be aware we are not medics and can only go  experience. That was a really quick turnaround. Your team are on the ball. TCC is Transitional cell carcinoma. The most common and usually the best to deal with. The T is the stage meaning how far it has progressed. Ta is very early stage which is a positive . G is the type of cell and how it develops. G2 is usually medium aggressive but lately is being classed as higher grade meaning it is slightly more aggressive. The P simply means the results have been determined in a Pathology lab. It is not unusual to take samples from the muscle  as a precaution. A follow up TURBT is standard practice to check. Best wishes.

I was told the p meant it has been seen on camera when I asked want the p was for and meant. 

Unless I'm going mad 

It now worries me when they tell me something that isn't right. 

Thank you that does help, I had a bit of a panic when I saw high grade that had not been mentioned before.

Yes, you are right, the team have been really fast with everything, right from the start it's been a whirlwind.
I only got the results of my ultrasound the first week of December when they first mentioned a suspicious mass that looked like a TTC on the left of my bladder.

From the initial suspicion in early December it was CT scans, Cystoscope and in for surgery on 15th January. Then the results of the MTD on 4th Feburary.

I have no complaints and have a fantastic NHS team looking after me.

That makes a whole lot a sense. It's strange as when I returned from the 1st cystoscope I told the nurse I had seen it on the screen and she asked me if it looked like a cauliflower, it didn't. I can only describe what I saw, as looking like a bunch of balloons with a red glow inside them.

Wow and I thought mine looked bad being like broccoli or cauliflower tree like branches or even some sort of plant in the ocean. 

1) Grade 2 means there are a percentage of bladder cells showing high grade dysplasia. Dysplasia refers to orientation of cells. If they are 'wonky' in their orientation to adjacent cells, then they become high grade dysplasia, which is one step away from an aggressive cancer and have a propensity for high recurrence. They should be able to tell you what percentage are severely dysplastic. In my case it was pTa G2 (20% high grade dysplasia) Intermediate risk >3 cms. 

2) Resection with muscle is a very important part of the surgery. Without muscle, pathologists cannot stage the tumour. If after TURBT, no muscle is found, they have to repeat the procedure until muscle is obtained and this according to NICE guidelines should happen within 6 weeks. 

For patients, it is more important to know if it is Low, Intermediate or High risk. You can download NICE guidelines on bladder cancer, which will tell you exactly what risk you are. Your CNS can tell you about this risk.

Also, when your doctor said it was medium grade, he probably was referring to risk. In your case Intermediate risk. 

One other thing. Mitomycin reduces recurrence by 40%. Yes, the side effects are terrible, when it is given routinely after first TURBT. I had intense cystitis and systemic side effects for a week, along with haematuria. It all settled in a week and then five weeks later, I had severe haematuria due sloughing off the inner lining creating an ulcer below the original resection site. They had to do a second cystoscopy in 6 weeks, where they burnt off all the bleeding sites but fortunately did not find any residual tumour. 

Despite the severity of side effects, it is worth enduring the Mitomycin. 

Thank you, this gives me all the details I was looking for and questions to ask next time.
I forgot to ask about other things last time so I must write it all down.
During the ultrasound they found a lump on my kidney which the believe is just a normal cyst, the CT scan confirmed this belief.
Also during the CT scan they found a lump on my lung but again they decided it was probably just from a past infection.

I meant to ask how these two lumps will be monitored into the future, in case of any change in size. I would have thought the MDT would have discussed the monitoring of these lumps as well as the main tumor.

I had a really bad asbestos incident at work when I was just 18, I still go to the Royal Brompton in London once every 2 years (next this July) where they x-ray my lungs. These e-rays have never found anything. I brought the lump found by the CT scan to the Royal Brompton's attention and they said they would download the CT scan and take a look. They said a CT scan can see a lot more than an x-ray.