Tumour growth outside bladder wall

That must have been hard news to hear. Hopefully they will be able to use chemo or other treatment to combat the tumour and any secondaries. Usually there isn’t much point in removing the bladder once the tumour has grown beyond. Best wishes to you all. 

Hello Helen, I saw your post when you joined the forum but could not add anything to the responses made by other members at that time. You must both be feeling battered by the initial comments following the TURBT. I cannot recall seeing any other members on this forum who have had the same set of medical revelations - but I've only been on here for a bit over two years. I think a few may have had unwelcome news of similar magnitude i.e. more problems discovered as test results became available, making the previously envisaged treatment path chop and change to address the various factors. This will invariably involve several different hospital departments who then collectively decide how best to address the situation to improve the outcome while also taking risks into account. Try, in these difficult circumstances, to encourage your dad to maintain a healthy diet and if possible to stay as fit as he feels able to be without doing anything strenuous so soon after a TURBT. With luck when you discuss the results of biopsies in 3-4 in weeks time, the team will clarify what the treatment options may be, perhaps chemo as you mentioned. Have they suggested radiotherapy?

My symptoms were different - 7cm lesion in my bladder and huge loss of blood. My son and daughter who were then in their mid to late 30s were told by the medics that I might survive a week, possibly a month. I was placed in a side ward before being transferred to a high dependency bed in the main ward after an emergency TURBT. I mention this because I thought I was a goner. I did not know that the medics had a similar opinion - they would not tell me when I asked - until told much later by my daughter. This was in 2017-2018. I'm still here despite the cumulative 5 and a bit weeks in hospital back then and only palliative treatment since 2019 with the lesion slowly growing back and pink pee once or twice per month. In other words, don't assume the worst. Take each day as it comes. It is tough but cling on to hope. Wishing you both luck and a much better outcome than perhaps you are currently fearing.  Ray xx   

Thank you both, we will cling to hope that something can be done to improve dads quantity and quality of life