Hello there
I had some very sad news today from the hospital. They are going to discharge him as they can do no more for him. They cannot cure the UTI infection and now he has c.diff.
I'm waiting to hear from someone to let me know where he will be going. I don't think he meets the criteria for a Hospice.
It is all so overwhelming for me. Out flat is too small and I am unable to care for him at home. And I do not understand what happens regarding nursing homes and their fees.
To think he nearly made it to have bladder removed just a short while ago.
Hello FloGlow, Sorry to hear that you've received such sad news. Palliative care covers a range of care regimes, from care at home if the patient is semi-independent, to care in a hospice if the patient needs nearly constant monitoring, to specialist hospital care if nearly constant medical care is required. I hope that when you are contacted these or other options will be clarified, together with some discussion about the best future course taking your circumstances in to account. You may be able to gain further insight beforehand by contacting MacMillan help using the options usually seen at the base of these forum pages (just scroll down if on a laptop. Not sure about using a smartphone as I do not own one). For example: The help line is available 7 days a week between 8am - 8pm
I send my best wishes and hope that the path ahead can be made as gentle as possible for you both. Ray x
