Hello there,
I am at my wit's end worrying about my husband. He was due to have his bladder removed but unfortunately he went down with a very serious UTI which he is still in hospital with. The operation for the bladder removal has been cancelled.
He has had two scans - one was inconclusive and the other was clear for the cancer spreading.
He was told that they would eventually do another nephrostomy (he already has one on the other side).
The oncologist wants to carry out a colostomy bag operation which he has said will not prolong his life or be of any advantage to him and the Urologist has said it is not necessary and is worried about recovery because of my husbands age( 82). The oncologist spoke to my husband this morning - unfortunately visitors have been stopped because of staff shortages etc., - and said that they will not do the nephrostomy operation unless the colostomy bag is done first and has not given a reason why.
My husband does not want this colostomy as he cannot see the point of it and none of the family want him to have it.
My problem is because I am hard of hearing and the oncologist has an accent I can understand what he is saying and my daughter has tried to ask why he wants to do it and doesn't get a satisfactory answer.
I just feel so useless and am so worried with no one to help.
So sad to hear of this latest set back for you. Does sound as though oncologist & urologist disagree. No-one can force your husband to have something he doesn't want. I can understand how difficult it is when the medic is hard to understand. Perhaps you can ask for written information? Maybe approaching the PALS department would help, as they can advocate for you and ensure that you get satisfactory information. Best wishes.
Hi FloGlow,I’m so sorry to hear that your husband is in hospital.I was also going to suggest PALS you sound like you need some clarity.It’s no good when you have conflicting opinions it won’t be helping the stress levels.I hope you can get some help.Love and best wishes Jane x
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