Tula

Hi Sunshine forever . Not had Tula myself, but we know from being on here that they have to leave it for a few weeks for the bladder to completely heal before starting bladder chemo. I am sure someone with experience will be along to help. Best wishes.

Again not TULA  but TURBT 24, couple of small recurrences this year during rigid cystocopies. At my last one in Jun  several small and one large recurrence, at my next follow up for results which was early aug i think, was put straight on to mitomycin plan as soon as possible. Started early to mid sept. So 1 monty tops from the day I was told I'd be having it. 

It doesn't necessarily mean much. It really depends on the doctors that are treating you think you will benefit from certain types of treatment. 

Don't want to rain on your parade, but my fist tumour was 1cm grade 2 low pTA, aka no muscle invasive and low grade. 

Surgeon said little change of it coming back caught early etc. 

Went nearly 6 months with nothing coming back then 2 recurrences mostly small tiny ones it seems, but enough for then to go let's try and nip this in the bud somewhat. 

It's the calls they make based on heat they find, experience etc. 

But I've just been through the wringer for it as had a another check up and had biopsies taken. 

So no one size fits all generally they will have certain plans and go certain ways as oar for course. 

I'm like you I tried to be aw prepared as you can be for all eventualities. 

Thank you so much for info urology team are great but sadly nigh impossible to get them respond on the telephone!

Thank you Simon for info guntimes ahead for me! Keep wellx

Wow meant funtimes ! Not qjite ready to be put down yet

Hi Sunshine forever,Have you tried emailing urology ? I never got anywhere phoning but an email gets a response.Love Jane x

That's right for me too (re email) although I do have a great CNS who rings back as soon as she can though it might be a day or two at very busy times.

Good luck,

Latestart

Thank you Jane the old brain not working too well hadnot given that a thought! Will dox

I even got a phone call from my cardiologist after I emailed so it’s worth a go.x