Hello, hope you’re all well. I’m looking for advice, support, encouragement.
My mum was diagnosed today with T1 G3 bladder cancer after TURBT. They said they did a full resection with no tumor left, and all the scans are pathology so far indicate it hasn’t invaded the muscle. They cautioned that she now needs a repeat TURBT to look at the muscle, and treatment moving forward would be based on that. It could be immunotherapy if still NMIBC or more aggressive like bladder removal or chemo/radiotherapy if it has invaded the muscle.
They said all her scans (CT, MRI) show no progression elsewhere.
Has anyone else been through this? How is it best to support a parent in this situation? She’s 74 and it’s just been the two of us since I was a kid so we’re very close, and I’m absolutely terrified.
Any advice would be so gratefully received. Cheers all.
Hello Mrc774db30a and a warm welcome to this friendly and supportive although sorry to hear about mum. A follow up TURBT is standard procedure just to mop up and give a more accurate diagnosis. The immunotherapy treatment would be BCG. Administered directly in to the bladder usually once a week. This treatment is designed to destroy any rogue cells and help prevent recurrences. The treatment can be very successful. Many of us have been through the various treatments and there is usually someone here to answer questions or just to lend an ear if you want to talk. I the meantime, try and make sure mum is drinking lots of water to keep the bladder refreshed. Best wishes.
Hi, my advice, having had bladder cancer aged 69 (I'm now 73), is to talk to your mother and understand how she wants to cope with the situation. How does she react in difficult situations? For example, I like to know everything about my illness and want to talk about it openly, usually using humour to diffuse tension if needed. Can you help her do that or does she prefer to bury her head a bit?
I expect her medics have given her information re TURBT and the Macmillan website has excellent material on bladder cancer. Those are good places to start for understanding the illness.
My daughter has been a great help in coping with my treatment and life after my operation (mine was muscle-invasive and I had my bladder removed and a stoma created). In return, I have made sure not to bury her or my husband in extra worries. They tell me that my approach has helped us all deal with the cancer. We have been more or less back to normal since around 6 months after the bladder removal.
Your mother will be having a series of treatments that are tried and tested. Ask anything that you like about it. There are many of us here who will have experienced what you want to know.
Try not to worry, it doesn't help. We can help you both cope with this. And it sounds as if your mother has been diagnosed fairly early, which is good.
All the best,
Latestart
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007