I’m just looking for some guidance on what to do next.
I had my TURBT with a consultant outside of my local area as this was first operation date available. They found MIBC stage 2/grade 3. Their recent MDT meeting recommended bladder removal. When I discussed this with the consultant he told me that keeping my bladder would be a ‘death sentence’ (his words - yikes) and that he only advocates chemo/radiotherapy bladder sparing for older patients and I’m 56.
I then transferred to a consultant in my local area who wants me to consider the chemo/radiotherapy. That quality of life was better than quantity. However, bladder removal was still an option, but he would take out all my lady bits too….and that a bag would be the only option to me.
I’m totally lost. A good part of me still has the first consultants words of ‘death sentence’ ringing in my ears and wants the bladder removal.
I was also told from consultant 1 that I had an excellent prognosis if I removed my bladder (95% survival) while Consultant 2 is saying 70%. All based on the same reports, nothing has changed.
im just wondering if any of you had any thoughts about this. I just don’t know which way to turn. I’ve had a sleepless night. X
