Hi everyone,
After noticing blood in my wee, it’s been a bit of a whirlwind for me.
I’m 56, a woman and been vegetarian for a long while, never smoked and only rarely have a drink. So thought I was pretty healthy, but I suppose bladder cancer can happen to anyone.
I went for my NHS CT scan and in my mind convinced myself everything was ok. The CT scan came back clear but they wanted to do a ‘final check’ with a Cystoscopy. It was this procedure which picked up a tumour.
I have bupa so I set up the TURBT with them, as there was a shorter waiting time. I booked myself in for a pre consult meeting 3 days after the Cystoscopy result and had the TURBT 2 day after that, so all very quick.
Following the TURBT the consultant advised me that he believed the tumour had gone into the muscle, but (as far as he could see) not the surrounding fat.
Im still waiting for the biopsy results and had a second CT scan …I have a meeting with the consultant next Monday to hear about the diagnosis and treatment options. I’m terrified.
I’m hoping that I can save my bladder and do combined chemo/radio …but I’ll chat through with the consultant.
Im on here to see if anyone has been in my position and get some advice and benefit from others experiences.
x
Hi LoobylouStaffs4fd2f6 and welcome to the group. Sorry to hear you have had a tumour identified. I am sure you will get lots of support here going forward. Early days for you yet and you should know more when the path results come back. Not sure how the private sector works, but in the NHS there would usually be a follow up TURBT along with CT and MRI scans. As well as giving a bigger picture of what they are dealing with, the scans check to see if anything else is going on. These follow ups give a more accurate diagnosis. There would then be a multi disciplinary team meeting (MDT) with professionals of different disciplines to discuss your case and plan a way forward. My tumour was muscle invasive and I went with the chemo followed by chemoradiation route. Happy to help with any questions about that, but like I say, early days for you. Best wishes.
