Have been at this since April - and now to commence chemo 4 September.
Any tips/ advice would be welcome i.e experience post dose / toleration. Am I likely to be able to drive after ?
I believe my next treatment is 11/9 - although getting confirmation is like wrestling fog. I intend to do this 4/9.
im also involved with urology still and cardiology
also want to speak with urology / anyone with experience of ‘ orthotopic neoblader reconstruction ‘
Hi Douggie2f1557 and welcome to the group. If you are having intravenous chemo ( Gem/Cis) , side effects vary from person to person. I tolerated it quite well with no real side effects, but others do have some sort of effects. It can be a long day in the chair, so wear comfortable clothes. Take snacks and drinks and something to keep you occupied. Chemo lounges can be quite friendly and upbeat and not all doom and gloom as you may expect. I drove to all my sessions, but it may be wise for some one to take you for the first to see how you get on. Best wishes.
Hi Dougie, Rily has offered sound and constructive advice. Chemotherapy sessions are not as frightening as we all imagine. The nurses and staff are professional and friendly and understand patients worries. I tolerated the treatment very well and drove to and from my sessions ( free parking for cancer patients then) good luck with your treatment I hope all goes well.
Garviv
Id just like to say good luck with the Chemo.
Can't add much else really I'm at hospital now for round 2 of Mitomycin into my bladder but that is a breeze compared to intravenous that's for sure.
So wish you all the good luck and strength for your chemo.
________________
My name is Simon.
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
Hi Douggie, hope your first chemo session went well. I'm sure the team looked after you well.
I had 4 cycles of chemo in 2022 and managed them all fairly well. By the 6th or 7th my hair had thinned a bit and I began to feel quite exhausted. The effects are cumulative and, as others have said, differ between patients. I found the constipation from the anti-sickness drugs was the worst bit - my tip, don't take the tablets and drink broccoli soup. I didn't get sick, but then I tend not to anyway, we're all different.
By now you know the set up and it won't feel so strange and possibly frightening for the future.
Good luck with the rest of the treatment.
All the best,
Latestart
Thank you. Went fine. Yes- efficient and pleasant procedure. Few days after- no effects. I’d been told that my chemo was usually well tolerated ( by other sufferer and a couple of nurses who I trusted) - and that seems to have been the case. Bit more tired than usual - but nothing crucial.
thanks again - next dose 11/9 - hopefully will be ok - but some say cumulative- we’ll see.
I have a few outstanding questions for urology- main trouble there is reaching the right people- but crack on !!
We always say ring or email your CNS (for the appropriate team - oncology or surgery) and they'll get you to the right person
All the best,
Latestart
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007