Feeling a little despondent and not sure what happens next. Had mytomycin after first turbt and tumours came back. Have to have a CT scan to check if it in my kidneys but not sure what happens next. I am usually a positive person but all the uncertainty seems to have knocked me for six.
Not sure if they will give me the BCG immunotherapy and does this work?
Hi Maisies Granny .Sorry to hear you have had to have a 3rd TURBT. Once you get your results back you will know better what treatment you may have going forward. If it is BCG, then this treatment does have successful outcomes. Best wishes.
Thank you for your reassurance it certainly helps.
Hi Maisies,
Sorry to hear you had to have a third TURBT.
I believe CT scans are very common when diagnosed with bladder cancer.
Not wishing to tempt fate, but I've been on BCG since early 2023 and touch wood, my last biopsy showed no reoccurrence.
Wishing you all the best.
Trevor
Ho Maisies Granny, after a CT scan it takes several weeks to get the feedback - mine are usually done in 4 to 5 weeks. Then usually the medical team gets together to decide next steps (in my hospital they seem to meet on Fridays). Then you have an appointment when they tell you what they propose.
I my case I had to have my bladder removed as the tumour was into the muscle around the bladder, but I read a lot here from people on BCG who are doing well and completing their course. And of course not everyone who finishes treatment remains on this forum.
They then use CT scans to check everything is still OK. So one gets very used to them. I had 2 years post op being scanned every 3 months and now they do it every 6 months. It's all very straightforward. I even have a standard outfit without metal fastenings so I don't need to get into a gown.
Hope everything goes well and you have your appointment about next steps soon.
All the best,
Latestart
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