Husband has a recent diagnosis

Thank you Rily for replying and I completely understand what you say.

I will ensure he drinks plenty (and goes to the loo, as it stings so much). 

Hopefully we will have his follow up appointment in the next few weeks. 

many thanks again x

Hello. I just wondered please, how long people stay off work after their first TURBT? My husband works 3 days a week now (due to his Alzheimer’s, as he gets tired). Not sure what to advise him with returning to work. Apart from feeling tired and needing the loo fairly quickly once he needs it, he is recovering well. 
thank you x

Hi Firefly . There is no specific recovery time after a TURBT. Things can depend on how severe the cut has been. Personally after my last two TURBTs, I was fine after a few days, but important not to do any strenuous or manual work for several weeks. I would say at least a couple of weeks off work as long as nothing heavy is involved. Best wishes.

Thank you very much Rily. I was thinking perhaps two weeks, so that is very helpful.

Thank you ️ 

Hello all. Please could I ask about this. We have an appointment next Wednesday to discuss the TURBT and treatment etc: they have asked to book in for a second chest CT scan (we’ve not had the results yet for the first one a few weeks ago) and a cardio exercise test.

I'm not sure how common this is. I’m not discussing much with my husband as he is in early stages of Alzheimer’s and rational etc, are not what they were for him. 

My sense from this (and I could be wrong), is that they are checking his fitness, for major surgery (I.e bladder removal). 

Please could I ask if these have been part of the testing for others.

Many thanks for taking the time to read. X

So sorry you are dealing with so much. I suppose I just want to say whatever you feel is ok. I initially I thought I ‘should’ feel a particular way like maybe brave or something but actually I felt so scared at the beginning!! Recently I saw a parents advice to a child. The child said I can’t do it. I’m scared. And the mum said ‘ what do we say? Just do it scared’. So that’s what I’m doing! So do this however you feel. I have grown up children too but o have to say I didn’t last long trying to protect them. They are my best support. Adult kids I think value honesty so lean on them if you need to. 
as the kind people on here have already said it does get easier once you have a plan. Everyone on here will be right behind you in this experience. Xx

Thank you so much JoyceF, for you kind and supportive words.

Two big diagnoses’ for him and at just turned 60. It has been hard to take in but we do muddle along. 

It is very true, our children can be a great support and I do open up to them if it gets too much for me. 

I wish you well and thank you again x

I suspect that the medical teams are simply amassing data so that when the multi-disciplinary team meets to discuss your husband's case they can make the best decisions regarding treatment paths for him. Quite often after a TURBT, the path lab results and previous CT scans may point to the need for further investigation of more specific aspects, all as part of the process of defining the stage of the cancer and assessing how well the patient is before committing to further treatment, as each option will present different degrees of risk. I had a follow-up CT scan after radiotherapy and another one after the 1st of my two TURBTs. Many years ago I had a cardio fitness test (treadmill whilst being fed with marker gases) but not in relation to cancer. That was caused by a work x-ray health check which showed my lungs were larger than normal, sometimes a feature of the body compensating for inefficiency. I was found to be absolutely fine in that respect. I put it down to playing the euphonium at school .  So I would not be overly concerned about the extra tests for your husband. I hope that you will soon be informed of their collective findings, have some treatment details put to you for consideration, then focus on that path. Ray x   

Before I was approved for the bladder removal I had to pass a cardio test because robotic surgery is tough. They discovered a heart problem but after treatment later on I was able to have the op. (in my case I peddled on an exercise bike while they increased the resistance. I'd thought I was fit , but it was exhausting.)

Can I suggest that you open up a little before things become too much. You need all the help you can get with either diagnosis, 2 together needs all the help you can get, in my view.

All the best,

Latestart