Husband has a recent diagnosis

Hi Firefly . The flexible cystoscopy is a visual inspection and can't really tell if gone in to the wall or just sitting on the surface. It is only when the TURBT procedure is done and biopsies taken will they have a proper diagnosis. It is unlikely you will find anything out at the CT scan. They just take the images which are then sent off for analysis. The scan also adds to the jigsaw in order to plan going forward. Best wishes.

Thank you very much for that detail rily 

I am just in the waiting room now. Husband has pre op apt for Thursday, so I suppose he may have op a few days after that.

Thank you again. You all know what an anxious time this is and it is helpful to chat on here. 

thank you x

Hi,The scan should give you answers as to how far into the bladder the tumour has gone.As rily has said it’s difficult to tell from cystoscopy.They normally try to get you in for an op within a few weeks of the pre op so you may have a bit of waiting.It is not uncommon to have a second TURBT a few weeks after the first.If the tumour is large they remove more of it at the second TURBT and do biopsies too and combined with scan results a treatment plan will be decided.Love Jane x

• Thank you very much winkers60. He is in quite a bit of pain and burning when urinating and so much blood. I wonder if I should maybe message the GP or if it is just to be expected? Thank you x

It’s always worth checking that there is no urine infection present.Burning can sometimes indicate infection so it might be an idea to get a urine sample to the gp’s to get tested.I’m sorry to hear your husband is in pain how miserable for him.Is he drinking enough ? love Jane x

Thank you again. He is thankfully drinking quite a lot of water and weak orange cordial.

I will take a sample into the doctors just incase.

Thank you x

It’s good that your husband is drinking.Lemon barley water seems to be popular with this group.Prior to cancer I found Pear juice soothing when the bladder was painful.Jane x

Thank you. I am heading to the shop soon. I will pick up some of the Barley Water. 
thanks again ️ x

Hello. Thank you all for your support previously.

My husband had his TURBT today. Unfortunately, they wouldn’t let me in with him. As he has Alzheimer’s (albeit  quite early stages), he cannot recall what he was told. We will have to wait for our follow up appointment. 
This is a picture that the consultant drew him to show him what was happening. 
I wondered if I could please ask if this means anything to any of you (hope this is not inappropriate to ask). 
thank you x

Hi Firefly . Good to know your husband has got through his procedure ok. We are not qualified to offer an opinion on the drawing as we may come to the wrong conclusion. Once the biopsy results are in, you will have a much clearer idea of a diagnosis and the way forward. There may be a follow up TURBT which is standard, along with some scans to give a more accurate diagnosis. In the meantime, try and make sure he is drinking lots of water to keep things flushed out. Best wishes.