I've had an awful last 24 hrs. I had my 2nd BCG treatment yesterday morning and the nurse had real trouble inserting the catheter as I think there was some inflammation.
I felt fine until after my first pee and then my whole body went into spasm with very intense pain despite having oramorph, Buprenorphine patches, hyoscine (buscopan) we couldn't get it under control. I was drinking gallons of water and good old barley water to try and flush it through.
Every 10 minutes for 6 hours I was rushing to the toilet and had huge spasms each time. All the hairs on my arms and face were prickling and standing up and after 5pm I started to get all the flu symptoms. By 9pm I had a temperature of 41 degrees and was totally burning up and shaking and my eldest daughter had just got in from work, saw me and called an ambulance out.
The ambulance stayed for a good hour or so and decided it was too risky and germy to take me in to hospital and desperately tried to get my temperature down before they left with strict instructions if it went back up again to call back and get help.
What a difference from my first treatment! I was absolutely fine, hardly any problems at all just mad nasty dreams.
I've been left today with some pain, thank goodness the spasms are calming down a little and I'm stuck in bed with flu symptoms, headache, sore throat, body pains and my temperatures come down a bit.
I'm left wondering what this means going forward now? Still got 4 treatments to go of my induction. I had rung my CNS in the afternoon due to the amount of pain I was in before all the other symptoms kicked in during the evening and she said if they have similar problems next week they might have to abandon this treatment and go down another route, but what route!?
Feeling very scared, fed up and very rubbish, will have to chat with my CNS on Monday and let her know what's happened I guess. Just wanted to get treatment done and dusted and get back to work and a little bit of normality.
Booooo!
Thankyou Lynn!
It just helps knowing there's people out there!
Kitty xxx
Thankyou everyone!
Your support means a lot!
kitty xx
Hi tortoise!
Thankyou for your reply.
It's definitely comforting to know I'm not alone!
Sounds like you've not had the easiest of rides either!
Good luck with your cystoscopy! I hope your journey gets better too.
Kitty xxx
Thankyou Rob!
I'm definitely going to have another chat with her.
Fingers crossed it was just my body going 'wow' this time and hopefully the next one will be not as bad!? I have to say though it has been a bit unnerving.
At least we know it's doing something I suppose, I really wanna try to get through the treatments though as I'm not sure what else they would do and I'm definitely not up for loosing my bladder completely yet.
Good luck with your treatments and I hope you have an easier ride!
Let's fight the good fight all together!!!
Kitty xx
