So 1st of May I had the radical cystectomy, it was ok I did still wake with pain but got through it .
Didn't realise I was having an epidural as well as general and had robot assisted surgery. Looked at the clock as the epidural went in , it was 8.10am and the next i knew i was being put on the ward and it was 7pm.
Recovery is slow had 9 days in hospital but now I'm home , getting used to the bag and the routine , still so stiff post 21 days , I keep having little walks but very awkward in my movements. I can't put my socks on or stand up for long periods but healing .
Now waiting for my consultant to give me the news from oncology, has the cancer all gone? Or is it still there and has spread. Nervous and a little afraid but what will be will be
Hope your all doing well?
Hi Podperson.It’s good to hear you are through it and. back home.It’s early in your recovery so you must take it steady.As you start to heal you should find it easier to move and manage things like your socks.Just listen to your body and don’t overdo it but carry on with your walks.Hopefully each week you will pick up a bit more.Best wishes Jane
Great to hear from you. I'm not sure that I was able to post coherently 3 weeks post op! The walking is more of a shuffle at first, but gradually you will find you can straighten up. I found taking small steps instead of my usual long strides was better. Standing still was much worse than walking or pottering. Soon you'll be doing more, but do expect some months before you feel full strength returning and fatigue lifting. Hope all continues well.
3 months done, any advice going forward, did it take long for the stiffness to go?
Not sure about stiffness, but I had lots of twinges and aches in different places for months after, as I got more active and stretched scar tissue/unused muscle. I still have one slightly sensitive area - there can be some nerve damage during the op.
I crept around for a week post op and a stick was useful outside in case I felt dizzy or lopsided. My son in law escorted me too.
After that I hadn't time to think about how I felt as my husband came home from a different hospital after open heart surgery and, though I wasn't required to nurse him or supervise his early movements I was able to help by fetching stuff - living in a town house means stairs whenever you have to get something.
I think not having time to think helped a lot otherwise the whole thing might have been very stressful. And no one could wrap me in cotton wool as we were all so busy just getting on with things.
My advice, keep moving little and often, don't lift anything weighing more than full kettle, and stop and rest whenever you need it. And eat healthy food plus the odd treat - Twirls did it for me.
All the best,
Latestart
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