Hi peeps...me again! My husband has not had his kidney CT results yet (rang the urology department to be told they are in but have not been looked at yet?!)
Anyway, for the last few days, my hubbie has had pain on his left lower back / side. I am feeling really upset watching him (though clearly, I'm hiding it). He's worried that it's an indication of something else sinister. I keep thinking back to a month ago, when every thing was normal before the s* hit the fan and turned our world totally on its head.
What's the protocol for CT scan results - as in how long do we have to wait? ...and does the referring person (in our case, the urologist that did the initial confirmation and referral for the scan) contact the patient?
Thank you
x
I wish it were different and it isn't easy, but I have learnt over time that this is the timescale at my hospital. I also refuse to put things on hold or to worry until I need to ie I have been told something serious.
If your husband's pain is bad, meanwhile, perhaps you need to tell the GP or Urologist who could advise on pain relief?
The main reason for the timescale is that there is a shortage of radiologists to interpret the scan and provide a report. My hospital sometimes uses outside radiologists to read and report but they may not always have the experience in accurately assessing the meaning of various things from the urological cancer point of view that the in-house radiologists have. (Usually that has meant they highlight a potential symptom post-op that the in-house staff see a lot and know isn't serious.)
The next step is usually the MDT - the weekly multi-disciplinary meeting where all the relevant specialisms meet to discuss patients and decide what treatment(s) to offer or review progress. It isn't just the Urologists, as far I can tell oncologists, radiologists and haematologists (and probably others) attend and discuss results and how patients are doing at my hospital.
My oncologist has rung me after the meeting if there is something urgent. But usually she reports back at our next meeting. At the start before chemo began it was a Urologist who told me what they had found face to face.
It is hard that we have to wait but on one occasion I was called in to hospital for an urgent scan (not related to the cancer but originally discovered on a scan done for the cancer) and saw the result online the next day so I know that if needed they will act very rapidly. Otherwise we wait our turn, I'm afraid.
Over the past 3 years I have lost count of how many CT and MRI scans plus other tests I have had to get me to this point. And there are many more like me. We are lucky to have the NHS.
You can ask for a disc of your scan and take it for a private report or a second opinion but I have not done this.
Over the years I have had CT scans privately for eg jaw/teeth problems and they cost many hundreds of pounds.
Good luck.
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