Hi all, In the past few days I've been diagnosed with UTUC which seems to be pretty rare. When the daignosis was confirmed the surgeon opened with, 'This is treatable and I am confident I can cure you' and booked the surgery. The next day she phoned to tell me that someone else had noticed my lymph nodes were enlarged, that I needed a biopsy, the surgery was cancelled, I would probably need to be treated with chemo and if that didn't work it would be terminal. This was done over a very quick phone call and she said she wouldn't tell me anything else at all until the biopsy was done. It felt quite brutal but I accept there is no easy way to deliver news like this. The biopsy has now been booked for later this week but no one has told me what to expect and the results won't be back for a further two weeks. I just wondered if anyone else had been in a similar situation and could offer any words of advice. I'm feeling pretty overwhelmed and alone right now. Thank you in advance.
Hi Leeas and a warm welcome to this friendly and supportive group. It is understandable the way you feel and many of us will know the feeling of uncertainty and not knowing. Early days yet and they don't seem to have all the information to plan the way forward. You have a biopsy coming up and probably some scans. When they have all the information and full diagnosis they will come up with a plan for you. Once you know which way you are going it makes things slightly less stressful as you have something to focus on. Best wishes.
