Hello to all and everyone who has answered .
With the next step , cyscosopy to see if its terminal or not .
I have been strong for everyone and shown the ok face , but I'm afraid
Hi Podperson
Firstly let me say I’m sorry you are feeling afraid because of your upcoming investigations but what I will say is there has been some people on the forum who have faced a diagnosis similar to what you are possibly faced with and are still on the forum supporting others Rily being one and he really has a lot of experience it’s natural of course to hang on every word a consultant says but they will mention possible outcomes and these outcomes don’t always come to pass but they will mention them I’ve experienced this myself and then when it doesn’t happen you think why did they say that but they feel in their profession that they should say things just to say this is how bad it could be again I’ve experienced this I was faced with a Ta high grade diagnosis this time last year and they suspected that there was spread to my right Kidney by the time my second TURBT came round that had gone out of the window so to speak and they where happy to forget about that being a possibility I hope your cystocopy goes exceptionally well for you and you can move forward with your treatment and find some peace of mind going forward all the best take care
Ste
Hi there
Of course you are afraid, it's natural but if I've learnt anything over the last year it's to be kind to yourself and as someone else once said to me - thoughts are not facts. Breathe deeply and slowly and savour the here and now, the future will take care of itself. Wishing you some calm x
Hi Podperson . It's normal to feel afraid in the circumstances. The not knowing and uncertainty plays tricks on our minds. I think you have a consultation soon. Once you know what is happening, you will then have something to focus on. I hope it goes well. Best wishes.
Totally normal to be worried and or afraid of not knowing what the diagnosis is. Can't say it's gets easier waiting but once you have had the cystoscopy and results at least you will know what you are dealing with that can make it easier knowing what's ahead and also if it's better news rather than worse news.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
Hi I’m afraid too. I know what you’re going through. I have bladder/kidney/an now spread to my lymph nodes. Gone from stage 1 to stage 4. It’s frightening. An answers take so long to get.. I wish you all the best.i say I’m ok to my children an brave face but it’s hard
Bless you for bringing your strength here Gemma :-) I'll pray that your progress develops some light :-)
I totally understand your brave face for the children, but that is a heavy load you are carrying on your shoulders. Do you have someone you can vent/share with and show /talk about your fears GemmaGems ? Wishing you the very best and hoping you get answers quickly to start treatment.
Much love Angela x
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