Had my consultant appt

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Hi all 

Had my consultant appt yesterday, good news and bad really , my staging for the cancer is more a T3 than  T4  and when they do the op the consultant said he will take uterus, felopian tubes, lymph nodes, bit of bladder and some section of vagina.

That was a lot I did ask did he want my shoes as well ??

He reiterated again it was a life threatening operation and recovery is slow. He did say that if the cancer has touched the urethra then it has gone terminal , it's shocking to hear but he has to tell me everything, I'm trying to be rational about it. He said he wanted another CT scan and another cyscosopy under general and a fitness test but otherwise all systems go for the op , and I'm ready whatever needs to be done I'm ok with and I will learn to cope .

I didn't feel like I could ask this , for many reasons really , 1 I had my partner with me , 2 I'm quite reserved person 3 my consultant was a man 4 I felt like with all I'd been told in that meeting my question was this and 5 I kind of wanted to speak to someone who had been there and done that, sort of thing, and a woman .

That said my question was ..with him taking some of my vagina away ..what does that mean for my sex life? My partner, will I feel things differently?, I'm embarrassed writing this but feel only you guys who know , can tell me the reality.  Thank you in advance for any answers and hope I haven't embarrassed or offended anyone xx

  • Dear Podperson,

    Have you thought of ringing the helpline? At least you can't see whoever answers which may help. Also Macmillan has a lot of pamphlets about cancer and also I think sex after cancer. I downloaded the one on bladder cancer onto my tablet and still bring it up if I want to check something.

    I had my bladder but not uterus etc removed via robotic surgery. They take it out in a bag via the vagina (to contain the cancer cells) and I did feel the stitches inside there for a while after the op plus they said one often get bacterial vaginosis afterwards and to get pessaries from the chemist for that - though I notice Tesco sells them next the thrush stuff too.

    All the best and hope the above helps.

    Latestart