So had my follow up last week, got a lot going on with my stepdad being in hospital waiting to have a stent fitted as he is at risk of having a heart attack otherwise. So worried about my mum being on her own and him being stuck in hospital going on into the 3rd week now waiting for the op. Long long story that is.
Anyway onto the subject at hand. So had my follow up finally, first one at 3 weeks was cancelled and rescheduled for 4 weeks later. I know I should take solace it must be good news being non urgent and left to wait even longer. But I can't help it when the surgeon said it would change the grading and means even closer monitoring.
Anyway my consultant said nothing to be concerned about a very small recurrence quite tiny and to carry on as normal with 3 monthly check ups and take it from there.
He has ordered my a radiology appointment cause I have a dull ache in my left side sometimes since the op, says it is likely urine relic going back into the kidney, due to the resection of the ureteric office. I did ask is there anything I can do to combat it as it's not painful but can be irritating but he just said no nothing you can do.
So the radiology is just a check on my kidney to make sure nut he seems to think there is nothing to worry about.
Easier said than done of course cause it is always lurking in your mind, what if it comes back what if it gets worse etc. It's only natural to feel that way with such a disease, but still keeping on keeping on and just cracking on and try not to let the intrusive thoughts win too much.
So yeah hit concerned to be told something when your in recovery which seems to be incorrect, he did say he doesn't know why they surgeon would have said that to me or even that he would have. I know I'd been on medication but I was fully aware of what was going on and he did say it would change the grading. I didn't make it up.
Anyway onwards and upwards and hopefully even better news next time.
Sorry they both surgeons/consultants. Both have performed cystoscopies on me at different times. Dr Shipstone is the one I've seen the most and Dr Vipin did my most recent cystoscopy check up.
If that makes a little more sense.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all 
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
I'm sure I typed Dr Vipin 
I really do hate autocorrect
________________
My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
No it did say Mr I edited the post after you alerted me to it, your not going mad trust me.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
