Hi Everyone.
Well, it's been an interesting week. From firstly worrying about the procedure, to having it, realising that my initial fears were unfounded (the procedure went smoothly with no pain, had an epidural and watch the whole thng on a monitor) and the post op chemo and recovery all were fine. Ending up in A&E the same night due to a blocked catheter (not recommended) and finally the relief of having it removed 2 days later.
It's been a reflective week, with the enorimity of cancer sinking in and the irony of it rearing it's head in my retirement year.
And it's brought me to today; my urination is improving, volume on the increase, regular and clearer, but with some increased pain down below. GP has provided a fit note for a couple of weeks and I'm dropping a sample in to check for infection just in case.
As a newbee here I haven't had much interaction with everyone because I've felt I don't have much to offer yet. But it has been a great source of comfort knowing that others have gone through this and the comments received have been a big help. (Thank you all)
For anyone joining this community I would heartily recommend doing so and taking part. They are a very giving bunch.
More later
Best
Rob
I agree Rob
All we can do to help each other is offer words of comfort and advice when we can
In the same way it was given to us in those early scary days
Then the next person passes it forward and that's how it all works
Glad you are sounding so positive
Take care, Tina x
That is so true Tina.I joined this group over 5 years ago and was very scared of the impending cystectomy.It’s good to see each new member overcoming their fears and giving advice to the next.Love Jane x
Hi Rob. Good to know things are going well. Try not to overdo things too soon. It takes several weeks for the wound to fully heal. At about the 10-14 day stage, the scab on the wound breaks away as part of the natural healing process and you may pass some blood clots and blood. They don't always tell you about this and it can come as a bit of a shock if not expecting it. Keep up the fluids. Best wishes.
What a lovely post and kind , encouraging words Rob. This forum is a blessing, I found it almost 2yrs ago and very grateful I did. I love that we try , when we can ,to throw the ladder down for the next person who comes along terrified and confused as to what next. Its a place to vent, laugh, cry and get many a virtual handhold/hug when we need it. I am glad the operation and recovery have gone well. All the best
Much love Angela x
Hi Rob,
So glad you’re recovering well and feeling positive. Definitely drop that sample off or better still go in to your GP so that if you do have UTI you can get antibiotics immediately.
I got one 10 days in and am now on industrial strength antibiotics
Hope your recovery continues to go well and even if you do have a UTI remember to take it easy but it’s just a hiccup, you’re still on your way to healing from the op. x
I would echo Rob and say don't overdo things. It's easy to think your fine and it's a minor op but parts of your bladder have resected aka cut away and there is a scar/scab. Very easy to forget it is surgery and overdo things and have more blood and then start to panic.
I took 6 weeks off al told for mine then went away a week too early on holiday which caused some pain and then back to work 2 weeks early before having my stent out which resolved the pain I was having.
Everyone's situation is different albeit somewhat similar in the case of having a TURBT operation.
I would not be so eager to go away or back to work next time if there is one to make sure I was fully healed first.
It does get easier as time goes on when you have answers and know more about what you are dealing with. The worst but it is the diagnosis and waiting to find out what the prognosis is, it's a very worrying time and it's good so many reach out to place like this for support advice and help.
As said everyone tries to help in any small way they can to everyone on here.
Best of luck in the coming months and years.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
Thank you for your kind words. You are right, pass-it-forward, a good approach.
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