New here first TURBT 25th Feb

Hi Rob,

Welcome to this friendly forum, although sorry to hear about your situation.

We've all been in your position and although hard to comprehend ATM, it does get easier when you know what's going on and you have a treatment plan in place.

My tumor was also 3cm and I had my first TURBT on 21st December 2022,.

I found the TURBT not to bad, I stayed overnight after my TURBT and the hospital signed me off work for two weeks. Which I probably needed, bit tired and sore.

Although I wasn't in pain.

I had to have two TURBTs, but this one wasn't as intrusive and I was back to normal (ISH) pretty quickly, but was signed off for two weeks again. 

It's great you like water as you need to drink plenty to flush the bladder.

Wishing you all the best for 25th sure it will be fine and please keep us updated.

Finally just to add since my TURBTs two years ago I've been cancer free. Lot's of check's and BCG treatment's but I can't complain.

Take care.

Trevor 

Hi Rob and a welcome from me. Just to echo what Trevor says. A TURBT is relatively straightforward  procedure and all being well you may be home the same day. You just need to takes things easy for a while. More waiting then for your path results which then dictate the next step. Best wishes.

Hi RobR,Welcome to our friendly group.I hope you will find it helpful and supportive.Best wishes for your TURBT.The waiting is horrible but as Trevor says it gets easier once you know what treatment you will be getting.Jane 

Trevor thanks for your input and advice.  It's reassuring to hear people have had similar experiences.  I'll keep everyone updated and hope my journey will help others.

Thanks.

It will be over in a flash, best of luck, Leo

Morning Rob,

I had my first turbt yesterday and ultimately it was a completely reassuring experience once the anxiety fell away.. 
The waiting and the worrying are just awful but focus on your day.

Be prepared with an overnight bag (nice toiletries, comfy clothes, long charging lead, - excellent advice from this group, a book - whatever makes you feel comfortable).

You may not need any of it but I found thinking about it and preparing it all was a welcome distraction. 

Take advantage of your brief chat with your surgeon before your op. Ask questions, (I took a list. Again, advice from this group) tell them your worries about the op and what they may find.
Ask what they think about it from the photos from your cystoscopy (if you want to know).

They‘ll let you know what they think and whether or not they feel you may need an overnight or a second turbt in 6 or so weeks. They’ll also touch on further treatment which again is good to know that your treatment is already being considered. 

Of course necessarily everything is ‘as far as we know’ ‘as far as we can see’ etc but it’s still reassuring to hear experts considering your situation. At least I found it to be. 
You’ll meet the anaesthetist too - mine was absolutely lovely and made me feel very safe indeed. 

Concentrate your energies on the day and on getting it all done. This is the start…you’re now on the way to getting rid of that tumour and that’s a very positive thing! It’s a short op 30 - 90 mins. The important thing is the tumour is being removed. That’s the goal - getting it out so treatment and healing can begin.

Ste said to me on here yesterday to remember that the ‘unwanted lodger will have been evicted when you wake up’ - keep that in mind and even if you need a second turbt remember he’s on his way out! 

Now I‘m at home I’m taking it very easily. Drinking a lot of water, Robinson Lemon Barley water (a top tip from this amazing group) and herbal teas, I’m up and down to the loo a fair bit (3 times last night which is a lot for me) and so far peeing has been a painless experience.
Unlike my throat which is quite sore, my abdomen is a bit twingey but I’m one move closer to full diagnosis and treatment. I keep telling myself this to quiet the worries and it is actually helping. 

Good luck for the 25th - let us know how it went and how you are. x

Hi Nikki, so pleased to read your over your turbt and feeling OK, what a lovely post lots of great information passed on, and you sound much more positive  about your situation. Keep well. Love Lynn x

Hi Nikki, Thank you for you lovely post and re-assurance.  To be honest I sometimes think I'm more worried about the recovery that the TURBT.  But I'll keep you all posted and if needs be ask for more advice.  It's been really helpful having these replies.