Hi , has a turbt to remove lump in bladder just before Xmas, had biopsy results and it's been confirmed as cancer, stage 2 high grade muscle invasive . So been told I can have radiotherapy or surgery wich I can choose . But before that I've been offered advanced mvac chemo. Wich I am going to take . Just wanted to see if others had been through this chemo and if this really made them ill , been told its a high dose so tough treatment and highly likely to loose hair etc,
I’m sorry to hear the journey you are on and I can’t help much with being non muscle invasive but wish you well and all the luck in the world. I’m sure others will be able to give you their similar experiences and advice, but truly only you can make the right decision first you so talk all options over with your MD team and try and decide what your best course of action is.
For me I think it’s easier t just say to them what is my best option in your opinion and go with that unless I decide I want to go x route as I think that feels like it would be better for me.
Everyone is different and everyone’s journeys are different too even when very similar so it’s never a one fits all situation, same as some seem to get really good care and brilliant hospitals and doctors and teams and others don’t get such a good experience.
And lastly there is a fabulous bunch of people on here to help guide and support in any way they can.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all 
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
Not much younger than myself then 46 last year when I had a frank haematuria and the the whirlwind of tests and then the OP all in the space of May 31st at docs, cystoscopy soon after that, CT scan soon after that, TURBT on 19th July and 6 weeks to recover from that, but I did end up wishing I had not gone on holiday for a week in August and returned to work the week after that, had I not gone on holiday and had my stent removed the pain would likely have gone immediately, but at work it was giving me trouble and a lot of pain for not even doing much for 2 weeks until I got the Stent removed and the pain and discomfort that was still present at work went immediately.
I think one of the reasons I had such a bad experience after the TURBT was because the tumour was blocking my uretic orifice so some of that had to be cut away to hence the need for the stent to drain my left kidney into my bladder and also to let the ureteric hole heal properly without closing up completely.
That is why I think no one really has a universal experience as there are so many factors at play. Either that or I was just very unlucky or a complete wuss or maybe all the above.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
Indeed try to focus on the positives not matter how small. There has to be even small things to look forward to from time to time.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
