I've now been told I've got to have pet scan and I'm terrified can anyone put my mind at ease it just seems my diagnosis is getting worse and feel like I'm being fobbed of by the doctors
Hi Wilkie
I had a pet scan before my bladder removal-my consultants wanted a good picture of my plumbing inside as I was having other things removed at the same time, and my surgeons wanted what they called a roadmap to be able to see things very clearly before operating.
I don’t think it’s being fobbed off -the scan is just part of the process prior to surgery. I found the petscan the easiest of any type of scan I’ve had although it took a long time-about an hour while you wait until the radioactive tracer which is put in via cannula goes round your body. I had to sit quietly in a room while this happened. The scan itself didn’t take long-from memory less than half an hour and it is not in an enclosed machine like the mri, which is why I found it easier.
My pet scan didn’t make my diagnosis worse-it didn’t throw up any surprises in that sense but just gave clear images for my team to work from.
Sarah xx
Yes, that is something they want to check before any major surgery-in my case my particular operation couldn’t have gone ahead if the pet scan had shown my cancer had gone beyond the pelvis. Luckily I had no spread beyond what I already knew about, as it seems to be for you too, so keep those fingers crossed and take deep breaths.
It’s no wonder you feel anxious and upset when you are getting conflicting information from your hospitals, but it’s best for your doctors to be very clear about everything before going ahead with this major surgery.
Sarah xx
Understandable to be worried and concerned about any new developments, but try to look from a positive it’s good they are taking action.
Really hope you get some good news re the PET scan and giving you a virtual hug from some random bloke on the webs.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all 
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
I wholeheartedly echo those comments to anyone and everyone who have been on some roller coaster rides on their journeys, I’ve read a number of people’s tales, and it’s helping me by making me thankful for my journey being relatively minor compared to many others,
But everyone needs some support every now and whether relatively minor or major.
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My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
Hi Mark Mar09
Thank you for your kind words-I really appreciate the fact you’ve made this comment and I’m glad it has given you some encouragement-that’s lovely to hear. I’m counting down the days to the 5 year anniversary of my surgery and my part of my purpose now in being a Community Champion is to try and encourage and give hope to those especially who are starting out.
Even when things looked bleak for me, and they did several times over the years, I never lost that spark of hope inside me that I could get through things. Keep hold of that too and I wish you all the very best with your treatment and subsequent surgery.
My father in law had a cystoprostatectomy almost 18 months ago-he’s 79 now and has coped remarkably well. He was also very pragmatic and positive-he had 2 separate primary cancers and overall is quite astonishing in his attitude.
Sarah xx
