Mum has terminal bladder cancer, waiting on what next!

Dear Bubbly_lis, 

so sorry to hear of the situation, trite words I know but there will be many who read your post and also send their concern and care, and welcome to the forum.

I don't have any answers to your questions, but I would recommend you try calling the Macmillan helpline, 0808 808 00 00 open 8 till 8 every day. They may be able to signpost you to help for yourself. It may also be worth getting in touch with the Carers' Association for the area or county where you live. What they offer varies a lot. But you may find telephone support or groups to go to, even though you may not be hands on caring for your Mum because of the distance. 

I'm sure other forum members will be on presently to offer more info. 

Denby

It's so sad to here your story.  The biopsy or TURBT as it is known should happen pretty quick after the scan confirmation. Push for it ASAP and it will give you a better indication of were you stand. This forum is full of help and support from people who have been through everything. 

My bladder cancer is not terminal and I know its easy for me to say but try and keep your head up. You will know alot more after the biopsy.

I'll be thinking of you. Stay positive 

Mark

Hi Bubbly_lis, my heart goes out to you. What a terrible shock to hear over the phone . Have you asked when they will be doing the biopsy ? It will give them and you clarity of what happens next.  I can only imagine how frightening and painful this must feel to you. I hope you have a good support network around you. The suggestion to phone macmillan is good advice, ask them to help you with the kind of questions you need to be asking the medics. Keep in touch with the forum , we will help wherever we can. Take care 

They have decided not to do a biopsy, they said it is stage 4. The consultant told her today that, they can offer surgery but it would be extensive. They believe it is too risky and probably wouldn't be beneficial in the long run. Chemo is too aggressive for he so also not an option. They have decided not to treat it. They said they can't give a time line but some people can live 3-4 years with it. He saw on her charts that she is religious and told her "Your god with look after you!" I can't help but feel that she hasn't got long but they aren't telling her.

They have decided not to do a biopsy, they said it is stage 4. The consultant told her today that, they can offer surgery but it would be extensive. They believe it is too risky and probably wouldn't be beneficial in the long run. Chemo is too aggressive for he so also not an option. They have decided not to treat it. They said they can't give a time line but some people can live 3-4 years with it. He saw on her charts that she is religious and told her "Your god with look after you!" I can't help but feel that she hasn't got long but they aren't telling her. I wish we had some real answers. How long realistically, 6 months of 4 years, it's a big difference. She also has no quality of life because she can't sit still so can't travel.

Iam so sorry to hear that. I can't think what you are going through at the moment and your mother also. It's the not knowing iam sure is the worst thing. They must give you some indication of a timeline to at least ease your anxiety.

You and your mother will be in my thoughts 

Mark

Sorry to hear about your dear mum's situation.

Hope they can find some other form of treatment, maybe immunotherapy!

Hope she continues to live as happy as possible, for a long time!

God works in mysterious ways!

brylynne.

(God works in mysterious ways!).

Because I received 37 x 2 Gys for prostate cancer in 2011, it looks as though the radiation has gone into my bladder and therefore, I could not receive anymore radiotherapy. The Senior Consultant suggested that, if I had a RC, I may require two stomas because my bowel wall is extremely thin. I declined the RC due to complications! I had a heart - attack on 20/0724, which left me with an ejection fraction of 32%. I have just had a TURBT, 15/12/24 and the doctor suggested not to have a general anaesthetic because the risk was quite high, was this an act of god?.