Hello all,
My mum is 75, she has been diagnosed with bladder cancer after a fight to get the hospital to take it seriously. She was given a CT scan. The Consultant can to see her on his rounds while she was on her own and told her it was bladder cancer. She has dementia, she was confused and video called me in tears. She told me it was bowel cancer, this made no sense. She was very upset that she was on her own and the consultant was so cold!
I live 90 minutes away so I spoke to a nurse on the video chat and requested a doctor call me. A lovely doctor called (not the consultant) She explained that my mum has bladder cancer. She told me it's bad, it's spread to other organs and lymph nodes. I asked if it's terminal, she said yes but they can't give a prognosis or stage formally until a biopsy has been done. I was calm and controlled but once I got of the phone, I was a mess.
Today I spoke to my mother, she is in a lot of pain, they have given her and feels like she is sat on glass. They have given her co-dydramol, I told her I'd buy her a ring/donut cushion. She said she doesn't think it's worth it, she may not be here by the time it arrives!
I'm heartbroken! I feel so lost, angry, hurt, etc. It's affecting me badly. I lost my dad when I was 16, he was 38 and died from asthma. I don't want to accept it's terminal. I can't cope, it's breaking me!
I want to know if we have weeks, months, years. I want to know what I can do to help. I feel desperate!
Dear Bubbly_lis,
so sorry to hear of the situation, trite words I know but there will be many who read your post and also send their concern and care, and welcome to the forum.
I don't have any answers to your questions, but I would recommend you try calling the Macmillan helpline, 0808 808 00 00 open 8 till 8 every day. They may be able to signpost you to help for yourself. It may also be worth getting in touch with the Carers' Association for the area or county where you live. What they offer varies a lot. But you may find telephone support or groups to go to, even though you may not be hands on caring for your Mum because of the distance.
I'm sure other forum members will be on presently to offer more info.
Denby
It's so sad to here your story. The biopsy or TURBT as it is known should happen pretty quick after the scan confirmation. Push for it ASAP and it will give you a better indication of were you stand. This forum is full of help and support from people who have been through everything.
My bladder cancer is not terminal and I know its easy for me to say but try and keep your head up. You will know alot more after the biopsy.
I'll be thinking of you. Stay positive
Mark
Hi Bubbly_lis, my heart goes out to you. What a terrible shock to hear over the phone . Have you asked when they will be doing the biopsy ? It will give them and you clarity of what happens next. I can only imagine how frightening and painful this must feel to you. I hope you have a good support network around you. The suggestion to phone macmillan is good advice, ask them to help you with the kind of questions you need to be asking the medics. Keep in touch with the forum , we will help wherever we can. Take care
Much love Angela x
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