A whirlwind diagnosis that I thought I could deal with to start with

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Late October I had a cystoscopy which was showing a tumour, which was possibly cancerous. I also have a neurological condition that does affect my bladder. 

2 weeks later I had a TURBT to remove it with a dose of Mitomycin C stayed in hospital overnight. 

2 weeks post op I received the results that the tumour was grade 2 hg fast growing, knowing that I was to receive the 6 week treatment of the chemotherapy which was started 26th November for 6 weeks. 

The symptoms I had post op I thought they were due to the operation I did get an infection which cleared before the next dose was due. After the first chemo for the next week it took its toll on me for 6 days. Headaches, nausea, hot sweats which are normally from my neurogenic bladder. I think bladder spasms, but the fatigue and exhaustion is unbelievable. 

Before having my 2 dose I mentioned to my nurse administering about side effects and she said its unusual to get side effects and she thinks it's my neurological condition that is exacerbating my symptoms. 

Obviously coming upto Christmas I'm unable to do most things now that I used to, and just hoping that after the last dose everything will hopefully get back to normal or as normal as possible. 

I do know that I'm now under their care for the rest of my life. At the moment I'm really struggling with this.

Thankyou for listening xx

Annie xx

  • Sorry to hear you are having issues with your chemotherapy treatment. I hope things do get back to normal soon. Garviv

  • Morning Annie 

    Sorry to read your having side effects with your follow up treatment although I had the same grade diagnosis as you I did not receive the follow up mitomycin just had it the once and then surveillance for me was the MDT decision hopefully someone will have some advice to offer and if not perhaps your GP or team may be able to prescribe something that may help lessen these side effects for you still early Days for you hopefully things will improve for you in the coming weeks and you can start to feel abit more like yourself 

    Ste 

  • My husband had this treatment after his RC as he couldn't have before his op. So 4 months after op he started the chemo, he felt exactly the same as you. He had a whole day's treatment then should of had 3 hours the following week but was too ill. They did give him more steroids which made him feel a lot better. This was 3 yrs ago & he is doing well xxx  

    Kimdav

  • Hi Annie,  sorry to hear you're having side affects from your treatment. Once it's finished you should start to feel better.  I'm waiting to start the 6 week course of chemotherapy myself so will just have to wait and see how I get on. But keep positive and keep laughing "it's the best medicine " and hopefully you'll be feeling better soon.

    Brian.