Hello all.
Hello all,
I had my first BCG on Saturday and so far so good. However, I am now becoming quite concerned about the way things are being handled. For example, I still await a chest CT scan which was supposed to be done before treatment. I have chased up twice. Also, thanks to this forum, I realise that after I have finished my Immunotherapy x 6 - six weeks later approximately I should have a rigid cystoscopy. One had not been booked so I emailed my specialist nurse to ask for this and she booked a Flexi cystoscopy. I questioned this and she then responded saying I will now book a rigid cystcopy under GA - but why is it down to me to ensure that the correct follow-up procedure is booked? It makes me lose faith. if I had just accepted that, I would’ve turned up in February only to find that the wrong procedure had been arranged. I do not want to risk up setting the specialist nurse, but I’m concerned that something so important is dealt with wrongly.. any advice? Many thanks.
Hi Jessie15 . Sorry to hear you feel as though things are not going right. Different departments do not talk to each other and send out appointments independently, so not unusual for things not to come in order. We often have to arrange things ourselves. A rigid cystoscopy is not always used after treatment. In many cases it is a flexi check. Best wishes.
