Lung nodules

Not exactly the same but I turned out to have more heart problems than the AF they told me about at the time of my Cystectomy. I found out over a year after the op (because I wanted to know how to manage the AF properly and asked my GP to refer me - as he had very little info about what type of AF I have and people kept telling me to ask him). The anaesthetist and the cardiology people had talked it over at the time without seeing me and decided to put me on blood thinners to get me through the op. 

The meeting earlier this year when my 'new' cardioogist told me about these' little extras' from the 2022 review was weird and in fact I ended up laughing in disbelief. Since then I'm more philosophical, am about to have a second visit to her and plan to ask for changes to the medication she added on last time.

I think they only concentrated on the most important thing at the time of the op just so they could get me  through it. Maybe that was the same for you, and I'm fairly sure that if the nodules had been very important they would have mentioned them before. They may have noticed a change after the latest CT or just want to be sure before starting the treatment again. MDTs seem to be the place where people suddenly ask 'ah, but what if?' In any event, second guessing won't help. 

About how long it can take to get the appointment  I can't say but I would say don't worry too much - they've been treating you recently. In your situation I would talk to the CNS and see if they can fathom it out and possibly tell you more about the nodules and why now.

On a similar note, I managed to get some movement today on another 'little problem' by asking my Oncologist during my 7th quarterly review post op (which was clear thankfully) if she could help get feedback on this new thing that recently appeared on at least a couple of CTs and someone rang me before midday and answered ,y questions. Hope you can manage something similar

Hello Sh377.  I can understand your surprise and concern regarding the new revelations from 'old' results. Sometimes this can occur if old results are re-reviewed prior to the next proposed treatment or occasionally when old results are subjected to improved analytical techniques enabled by the march of technology. The specialists will want to ensure that all treatment is as safe and as successful as possible by checking with colleagues in different disciplines. They will have done this prior to past treatment unless it was performed under emergency conditions. There are many details in our files which are not routinely passed on to us, partly because many require a medical background to understand and partly because they usually prefer to keep details focussed on the main/critical findings. You can request or gain access to all of your medical files these days, these may however cause you unnecessary concern. I hope that they clarify things when they next contact you. Best wishes. 

Hi Sh377,I’m sorry this has happened to you.I’ve experienced this before I got cancer.My late mother wasn’t told she had a fractured spine and we only found out from another hospital admission discharge form which mentioned it.It is upsetting when information is withheld and I hope you can get some answers.I hope you don’t have to wait too long before you can move forward with treatment.Best wishes Jane x

Forgot to say I was diagnosed with peri cardia effusion as well when I was first diagnosed with bc so under cardio for that ,it’s just one thing after another at moment 

Definitely know that feeling! I keep telling people I'm trying to get seen by all the various specialities in the hospital! Up to 4 main ones currently, including urology.

Today I got a CNS in this new thing who rang and said they'll be discussing me again (not that I knew they'd had their own MDT or what they decided until yesterday) at another hospital that has 'Higher consultants.' She was very helpful and promised to let me know what they've decided once they've had the MDT with these elevated beings. 

Good luck to us all