Will I been taken off " fast track" now ??? I hope not !! I'm considering lodging a complaint against my University Hospital Trust management !! ( for subjecting me to answering 8 pages of check box questionnaires with too many irrelevant que

Hi BC69yrs . The fast tracking is usually only the early part of diagnosis when you are first referred to urology. Once the initial TURBT is done, then things tend to move at a fairly moderate pace. Pre ops need to be thorough in order to ensure you are fit enough for general anaesthetic. If you are concerned about your care you could try contacting PALS at your hospital who would look in to your case for you and maybe give you some answers. Best wishes.

Hi BC69  Do you have a cancer nurse specialist that you can contact regarding your upcoming operation ?

thanks for your very logical exposition

( I freely admit that I'm freaking out here.. and starting to drink ( which I shouldn't .. and I haven't had a " good drink" for 3 months now !! NB I'm not an alcoholic!!) .. just need some relief from the stress of it all.. and the possible return to my previously fantastically regular urinary contiinence & regular bowel habit !!

I'm still thinking that I WILL " have a go" at/to the University Hospital Trust .. to try and insist that they need to cut down the number of questions in " their"  8 page  Surgical preassessment questionnaire. MANY OF the questions are Irrelevant/culturally inappropriate/ and just plain INFANTILE !! ( & very, very time consuming to answer ( with verity !!)  as well !!)

What's/Who is  "PALS?"??

I'm 100% certain I'm concerned about my care !! ( I'm still actively suffering the cystitis I am suffering from !!)

( I'm hoping PALS is the committee that  ( they who design " camels ")   -- that insist on including MANY redundant, IRRELEVANT, Culturally inappropriate and infantile questions on their ridiculous questionnaires !!

Rant Over !!

Thanks for you replying anyway. 

I WON"T stop being vociferous about MY ISSUE until PALS accept it is an issue of their creation !!

Cheers

Thanks Angela

I do have a CNS.

I'll try contacting her tomorrow morning !

Thanks for responding to me post

Ciaran

Hi bc69yrs,

I understand your frustration regarding the filling in the forms. I've been getting knocked out for a biopsy every three months and have to fill in the same form every three months which is then followed up with a telephone call to discuss said questionnaire before my op.

I've filled in the same form 7 times in 22 months... Although mine is online, so might be quicker than a paper copy.

I did ask and was told they need to do it before any GA so I just go along with it all now.

Not everything makes sense to me, for example I had to give a blood test the day before my biopsy, despite the fact the results wouldn't have been returned before my scheduled op time. I couldn't see the point but it was on the list of things needed to be done. I've not had bloods taken for my 4 previous biopsies, so I guess it depends on what nurse takes the pre assessment phone call.

However, I try not to let it bother me, everything is a tick box and I think they're covering all avenues.

I know it's not easy, with all the waiting around etc too not get frustrated.

I hope you enjoyed your drink and are a bit more chilled now.

Take care.

Trevor 

PALS is Patient Advisory [i think] and Liaison [I think] Service. Anyway they are not quite a complaints department but supposed to take down your issues and pass them to the right people in the hospital. A lot of them are volunteers. And they cannot force departments or doctors to answer satisfactorily if at all, But they do often provide some help, so worth a try. 

One thing they are not guilty of is drafting the infuriating form you were given, that might be the anaesthetists' department.

I will write N/A for Not Applicable next to any overly stupid questions on forms I am given. I've not once had any comeback on doing so.

Hi Denby , I think you are right about the forms, they can be very frustrating , repeating things time and time again .The questions apply to the experience of being operated on and anaesthetised. I suppose if you think about it, the anaesthetist meets you very briefly on the day of your operation. They and the theatre staff need to know as much about you as possible, for safety sake. I am not sure there would be a shorter version of questionnaire tbh. 

Thanks Trevor ... for such a detailed reply - and, thanks again for just  the pertinent details too !!! so.... bloody succinct 'an all ( a cockney expression !! lol) 'll probably follow much of your excellent advice

 Also I MUST apologise to all on here for my original post and it's overtly attacking display of outrage/ anger/ anxiety attack/ frustration: I

or

 ' wotever ( another cockney expression that covers a multitude of my many other " "sins, transgressions/ inappropriate  remarks I committed to in my original post "  I hope ...I'd be delighted if all of you accept my apologyall accept my apology ??

Yep I did have a good drink last night. Over a 10 hour period I consumed almost 1/3 of a 75cl bottle of GOOD brandy .. and it has had two great effects:

1. It seems to have completely cleared ( hopefully) my severe cystitis !! ( The Irish word  "Whisky" means/translates as " Water of Life"

2. I'm much cheerier !! ( not deliriously happy or any fink ( another cockney expression) = your expression was " chilled")

I hate using the expression but 1. & 2. are a "win win situation" ( an upper middle class expression !! lol)

Cheers (more correctly Slainca ( sp?)  Irish for cheers !!

I'm gonna ring my CNS ( Oncology) next: I won't be confrontational or rude aggressive etc etc !! I just stand the best chance of getting a confirmed date for TURBT 3 from her.. that's what I want and need !!

Hi Ciaran, hope you get some answers from your CNS . I am sure she is lovely and wanting to help you as much as she can. I am glad you a feeling a bit better this morning. Good luck with the call

Bloods for grouping are standard prior to any surgical procedure, just in case they need to give you a transfusion. Whilst I understand that this is relatively uncommon with TURBT, it is still a possibility, and its always best to be transfused group specific blood. In respect to blood group, the result is usually turned around within a day, but the result is only valid for ~10 days from sample.