Another Flexi Done - Oedema

Leo1 2 months ago

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Another flexi done today by consultant post 1st BCG maintenance. Bladder all clear but original wound site showing some oedema still. Not really surprising after 3 TURBTs on same site, with last in mid June to check red patch (no cancerous cells found in muscle or lamina proprietor back then).

CT scan showed what appears to be quite a large area of fluid - query oedema - outside the bladder, immediately adjacent to TUTBTs wound site. Consultant think it’s oedema from wound site, but needs to be confirmed by radiographer. He thinks BCG has interrupted healing of wound site, but not 100% sure.

MDT Friday to confirm situation, and of course my mind is reacting, what if…..cancer has invaded muscle and fat layer?

Has anyone else had a fluid build up like this?

Anyway, I have been referred to the surgeon for robotic surgery for RC.

cheers

Leo

winkers60 2 months ago

Hi Leo,Good to hear you have a referral to the surgeon.I haven’t come across bladder oedema before.I hope you can get some clarification from the radiographer.I’m so sorry you have had so many issues from the bcg.Love Jane xx

Wel1979 2 months ago

Hi Leo

best of luck to you as you embark on the next chapter of your journey may it all go smoothly and you get back to some normality after your issues with the BCG treatments all the best

Ste

BFG 2 months ago

Hi Leo,

Sorry to hear about ongoing issues. Had to Google oedema as not heard of this before.

Hope you get some answers soon.

Take care.

Trevor

furbabymama 2 months ago

Oh Leo, it's just never ending for you. Hope you get some clarification soon.

Sending you and Mrs Leo a hug.

Love Ade xx

Leo1 2 months ago in reply to furbabymama

Hi Ade - should find out at tomorrow’s MDT meeting, everything crossed.

Leo1 2 months ago in reply to Leo1

Update: MDT recommend RC. Referred to surgeon. Another CT scan, pre op assessments, MRI scan to follow. There is a possibility that my cancer may have progressed, the MRI may provide some insight. Do I regret going down the BCG route? Yes. Wish I had gone for RC back in March.

Halofan 2 months ago in reply to Leo1

Hi Leo, I am so sorry that you have been through so much with the bcg. I hope all the pre op scans and tests happen quickly for you and you can get on with having the op and the road to recovery. We are always here for you man . sending you care and wishes for good test results.

Much love Angela x

winkers60 2 months ago in reply to Leo1

Hi Leo,Best wishes moving forward.Hopefully you will soon be free of the cancer and the pain.Love Jane xx

Leo1 2 months ago in reply to winkers60

winkers60 well it’s always the danger of BCG - under staging, which can have very serious consequences. I am replaying my decision to go down the BCG route and blaming myself, which is not great. I listened to the MDT instead of my own inner voice. Mistake, but I must move on. My message to G3 T1 patients : do not have BCG too risky, go safe with a RC.

furbabymama 2 months ago in reply to Leo1

Hi Leo, you gave BCG your best shot and it may have worked for you, we all want to think that we will be able to preserve our bladders and hindsight is a wonderful thing, don't blame yourself, you're only human ️

On another note, and I'm being nosy here, do you have a background in science? You always put forward such solid, logical, statistical information

Love Ade xx

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