Another Flexi Done - Oedema

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Another flexi done today by consultant post 1st BCG maintenance. Bladder all clear but original wound site showing some oedema still. Not really surprising after 3 TURBTs on same site, with last in mid June to check red patch (no cancerous cells found in muscle or lamina proprietor back then).

CT scan showed what appears to be quite a large area of fluid - query oedema - outside the bladder, immediately adjacent to TUTBTs wound site. Consultant think it’s oedema from wound site, but needs to be confirmed by radiographer. He thinks BCG has interrupted healing of wound site, but not 100% sure.

MDT Friday to confirm situation, and of course my mind is reacting, what if…..cancer has invaded muscle and fat layer?

Has anyone else had a fluid build up like this?

Anyway, I have been referred to the surgeon for robotic surgery for RC.

cheers

Leo

  • Hi Leo,Good to hear you have a referral to the surgeon.I haven’t come across bladder oedema before.I hope you can get some clarification from the radiographer.I’m so sorry you have had so many issues from the bcg.Love Jane xx

  • Hi Leo 

    best of luck  to you as you embark on the next chapter of your journey may it all go smoothly and you get back to some normality after your issues with the BCG treatments all the best 

    Ste 

  • Hi Leo,

    Sorry to hear about ongoing issues. Had to Google oedema as not heard of this before.

    Hope you get some answers soon.

    Take care.

    Trevor 

  • Oh Leo, it's just never ending for you. Hope you get some clarification soon.

    Sending you and Mrs Leo a hug.

    Love Ade xx

  • Hi Ade - should find out at tomorrow’s MDT meeting, everything crossed.

  • Update: MDT recommend RC. Referred to surgeon. Another CT scan, pre op assessments, MRI scan to follow. There is a possibility that my cancer may have progressed, the MRI may provide some insight. Do I regret going down the BCG route? Yes. Wish I had gone for RC back in March.

  • Hi Leo, I am so sorry that you have been through so much with the bcg. I hope all the pre op scans and tests happen quickly for you and you can get on with having the op and the road to recovery. We are always here for you man . sending you care and wishes for good test results.

    Much love Angela x

  • Hi Leo,Best wishes moving forward.Hopefully you will soon be free of the cancer and the pain.Love Jane xx

  •   well it’s always the danger of BCG - under staging, which can have very serious consequences. I am replaying my decision to go down the BCG route and blaming myself, which is not great. I listened to the MDT instead of my own inner voice. Mistake, but I must move on. My message to G3 T1 patients : do not have BCG too risky, go safe with a RC. 

  • Hi Leo, you gave BCG your best shot and it may have worked for you, we all want to think that we will be able to preserve our bladders and hindsight is a wonderful thing, don't blame yourself, you're only human Heart️ 

    On another note, and I'm being nosy here, do you have a background in science?  You always put forward such solid, logical, statistical information 

    Love Ade xx