I am seeing the consultant next week to discuss the BIG QUESTION. Can I stay on BCG or should I bite the bullet and go for a RC. My treatment since the end of February has led to almost constant discomfort and pain, from mild to excruciating. Coupled with this is constant frequent urination with a very poor quality of sleep, leaving me exhausted. Frequent urination has meant for me being more or less housebound. This is clearly a poor quality of life, so not really sustainable.
So the question is, can the side effects be mitigated so I can have anything like a normal life, or is it better to throw in the towel, and whip everything out whilst in a NMIC state and G2PTA.
In my bones I feel I have reached the end of the BCG road, and the risks of RC now have to be faced to live a life that is worth living.
Is there advice or words of wisdom from the community at this junction of the journey? Cheers Leo
Omg! That's a big one. May I ask how old you are? My husband was 63. No choice re his diagnosis. As he was otherwise healthy he could have a neo- bladder. I won't go into all the ins & outs. On Oct
er 4th it will be 3 yrs since op & everything that came with it. Obviously regular CT. And obviously regular cystectomy to check new bladder. It has been a journey but no bags etc. Longer op. Longerecovering but now almost 3 yrs on. Back to a normal life
Kimdav
