I had 3 x TURBT in 2021 but in last histology G3TP1 was still present. Couldn't tolerate BCG so had RC - removal of bladder, full hysterectomy and appendix removal, have an ileal conduit with stoma - all working well. Cancer cells also found in L ureter when operated on, cells removed. Two years later and CT scan all clear but bleeding started in May this year, quite shocking, very red - once every few weeks, once a week, once or twice a week and now every day - clears up but then starts again next day. Consultant says possible recurrence of ureter cancer, will arrange an in-depth scan but not right away as not good to have scans close together (really?). Just wondering if anyone else has had this bleeding - only have kidneys and ureters and conduit left so must be coming from somewhere there?? Can't think what else it could be apart from cancer recurrence
Hi TessaB
If I had been given the news that it might be a reoccurrence then I would be pushing for more scans whether CT, MRI, PET or Ultrasound to confirm the diagnosis so that a further treatment plan could be devised. I do understand that multiple X Ray doses are not advisable but as we already have or have had cancer then surely any reoccurrence needs prompt treatment to prevent further spread. I'm not a Medic but I have learned that those who do not shout loudly sometimes get overlooked. I would certainly ask about the rationale of watch and wait rather than to diagnose and treat.
Hope you get some answers soon.
Love Ade xx
Thank you, yes you're right, unfortunately the consultant was not a people person, more like a cold fish. Yes - if you're thinking cancer recurrence get me into a scanner ASAP!. Will be pushing that's for sure. Thank you
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