Week 4 of BCG Night Sweats

Hi Petel .Not had BCG myself but let me welcome you to the group. We do hear many different side effects with this treatment. I am sure someone will be along with experience to help. Best wishes.

HI. I have had 12 BCG installations so far, and find the effects can differ after each one. Brief synopsis:

1 - felt warm for 24 hours.

2 - felt warm for 24 hours

3 - felt warm for 24 hours. Blood and scabs in urine

4 - felt warm for 36 hours

5  -knocked me out for ~4 days with chills and sweats and lack of energy

6 - back to just feeling warm

7 - Chills and sweats for 36 hours. Right flank pain for 72 hours. Heavy "gel" fraction in urine

8 - Large clots

9 - no side effects

10 - no side effects

11 - headache for 5 days ; flank pain 3 days

12 - headache for 3 days, flank pain 2 days

With all the above, very frequent and painful urination for the first 24 hours, most with blood, but then settles down.

If my experience is anything to go by, some of the more unpleasant side effects aren't experienced on every installation, I am finding that keeping the stuff in for 2 hours is more of an issue with the latter instillations, but just making the 2 hour mark.

Hi Petel

I've just had number 6 BCG. I've not experienced cold sweats but I am a Menopausal lady and I'm roasting hot all the time .  I think we all suffer from different side effects. Check with your CNS nurse next week and see what they say.

Hope you are able to carry on the BCG journey. 

Sending you hugs and best wishes. 

Love Ade xx