Hi fellow travellers, I finished my BCG induction course 5 weeks ago, and have my cystoscopy next week. Tonight I saw rose blood in my urine. My imagination is in overdrive of course. Has this happened to anyone else on the BCG treatment programme? Any advice? Thanks Leo
Hi Leo. Not the news you wanted but try not to despair. These things are common and sent to try us. I have had a few of these over the years which turned out to be nothing. Best wishes going forward.
Leo, I don’t know what you’re going through, but I still check my pee all the time, am I right in thinking that nothing has been confirmed yet? I’m not surprised that you’re feeling down. Nothing I can say will make you feel any better, but I like everyone on here is here for you.
do whatever you need to do to get through this.
thinking of you,
Nigel
Thanks for Asking Angela. I was very down last night, but a bit better this morning. I have my pre op assessments tomorrow and next Tuesday so thing moving fast, which is good. I was not seen by the consultant yesterday as they were called away at short notice, and after seeing the registrar forgot to touch base with the remaining consultant to have a chat. Stupid of me. I wanted to ask what treatment options they would consider if they find a HG recurrence. To me it would seem unlikely to continue with BCG if a recurrence has appeared so early (it’s on the original tumour site). When I saw the bladder footage on the screen I thought I clearly saw papillary carcinoma dancing like seaweed in the saline.
Hi Leo, I am glad you are feeling a little brighter this morning. It is great that things are moving quickly and you will have answers soon. Try not to go to worst case scenario , i know that is easier said than done. Remember that what you think you saw was also in magnification , did the registrar make no comment ? As always with this rollercoaster of a journey , its not knowing and waiting. It is really hard.
we are here for you Leo,
Much love Angela x
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