Well, after first spying blood in my urine (October 7th, day before my Birthday - that's the only reason I remember it!) To now, where my diagnosis is clear & today is the day I have: radical cystectomy plus hysterectomy plus bilateral salpingo oophorectomy plus ileal conduit...& last Wednesday is when my Consultant told me that my cancer had grown thru' the muscle wall & spread into my pelvic lymph nodes, so they're leaving me later too!
Everything has happened so quickly since my TURBT on the 5th January! I'm apparently having chemo' once I'm healed - Consultant said approx' 3 months time?
I'm absolutely terrified if I'm honest, the only surgery I've had was on my feet & my jaw! I'm so lucky to have my beautiful wife at my side, she is my rock. My daughters have been brilliant too, we've had some deep conversations that I didn't ever think we would have.
I'm dreading the op' but keep focusing on the positives (as recommended by other BC grop members!) NO more bladder spasms...This fact alone is enough for me to party all night long....No more pads...No more of that particular pain that brings me to tears every time.
I haven't been given a prognosis?? Do I really need one or do I just keep paddling along??
Thank you for your time...Any words of wisdom will be very much appreciated x
All my Love to you all, Helen 
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Hi from France Helen,
Better say "bye bye cancer" ! A luck that everything went so quickly for you, really.
The last night before my husband had cystoprostatectomy he slept better than me, for sure....So I have a though for your wonderfull wife and daughters.
The first days after the intervention probably you won't feel quite confortable. BUT there are many helps to fight the pain (which was much less than expected by my husband). You will have to move as soon as possible also. Don't be affraid to ask all questions about your recovery, the conduit,...
Concerning the prognosis: keep in mind that some patients with good prognosis sometimes have recurrence and other with initial bad prognosis are still here many years later (I can'nt remember ttheir names
). This being said, enjoy the life everyday and make everything that bring you peace and happiness (walk, dinners with closed friends, shopping, hollidays,....).
Best wishes
Catherine
