5th Turbt

Hi Pugsy,I’m sorry to hear it’s back.I feel for you,I went through the ground hog day feeling with recurrent bladder ulcers prior to cancer.What is planned next for you now ? Love Jane x

Hi Jane, another TURBT then hopefully the mitymicin again. They don't want to use BCG as they say the side effects will be worse than what I have so continuous cystiscopies and TURBTs for now if the mitymicin doesn't work. As a last result I guess the bladder removed?  

Been told now they are going to go ahead with the  mitymicin and not do another op so fingers crossed this time it works. 

Keeping everything crossed it works this time.Love Jane xx

I have this way to think about the BCG and Mitomycin, funny for an eco-freak like me... It's like, you have a path sprouting weeds, So weed-killer is applied, most of the weeds fold. But a while later a few small new ones sprout, Because the path is now being kept a closer eye on , these are zapped with more weed-killer. Generally if you keep on like this, none of the weeds ever get too big. It's not that the earlier weed-killer 'didn't work' just that you get new ones.. So see what your team think is the best way forward.

Thanks Denby, never looked at it like this. I'm starting  HIVEC weds x

So that didn't quite go to plan ! , managed to get an allergic reaction to the heated mitymicin so it was stopped after the second dose. So back to having that 5th Turbt and then plan C whatever that is. I'm on my third year if this now and it just won't budge . Bcg is too strong for my superficial,  and no reason ti have a bladder removal, anyone know what's next??  Paula x 

Hi Pugsy .Sorry to hear the MMC didn't work as hoped. Hopefully your TURBT will keep things at bay until they come up with a new plan for you. Best wishes.

My OH's bladder was NOT having any with the MMC heated, spasmed it spectacularly STRAIGHT back out. Consultant said OK go for it at ambient temp then, he never retained it for an hour and by No six it was down to about 20 mins. But it still worked for him. Don't know if that's any help, but there it is.

Thankyou Denby, the procedure itself was fine and I had no issues . unfortunately  by the next day I was very itching on my hands feet and legs so it got pulled. The itching was pretty severe so no chance of having it another way x