Newbie, 44m GSOH seeks likeminded friends

If finding this forum has made you feel a bit calmer in yourself ( you sound it ) then it can only be a good thing…..even for a Sprog.!

Hi Robbo79,Welcome to our friendly group.It’s normal to feel as you do,but we are here to help and support.Once you know what you are dealing with it gets easier mentally.Love and best wishes Jane x

Hi Robbo,

I think we all have a GSOH here, and many of us even have our own teeth, too.

You are in the right place for sensible, well-informed and matey help. Welcome to the unit.

You have done the right thing to seek immediate help, the CT scan will be very useful to identify any problems and build the diagnostic picture. 

My mind what a whirl when I was actually diagnosed, but it has got better as diagnosis and treatment has progressed, I hope it’s the same with you.

all the best

Leo

Hi Jane, thanks. Hopefully I will get some firm guidance by the end of next week! Currently feel like sitting in a corner, pants on head, pencils up nose shouting “wibble”!

A Blackadder fan then ? Hopefully you will have fewer wibbly moments once you know more.Love Jane x

Hi Leo, thanks for the welcome. I only hope as this progresses I will be able to return the favour to others in need of grounding in the future. It’s horrible, the not knowing phase. One minute this world is great and the next (for me anyway, I have an overactive mind) feeling overwhelmed. Still, like you said, we have our teeth! Mostly!! Whatever happens moving forward I will always appreciate everything a lot more, I feel happy, (terrified) and grateful that there are genuinely kind and good people still existing on this wonderful planet (I haven’t met many in the past few years). Take it easy and thanks once again for the welcome   

I guess the theme works well currently! Captain Slackbladder!!!

Robbo79,

We are either all in the same boat, or have been in the past. I am still awaiting the results of the last TURBT, for example. But, the main thing is that I am in the NHS machine and things are happening quite quickly.

We are all here to support each other on the journey.

all the best

Leo

aka Captain Rose-Pee

Hey Leo, by the sounds of it you’re a nose ahead of me at the moment. I’ve been bouncing around the system for a bit, ultrasound found a bladder mass and since then it’s all gone a bit wrong, finally getting a CT tomorrow and booked in with urologist on the 15th. I have the anxiety of a child that can’t sleep on Christmas Eve! Hopefully all goes well for all of us! Stay strong!!

wibble!!

Hi Robbo78,

Welcome to this group, I don't think I can add any more advise from what you've already been given, but I'm a waffler so here goes.

Everything is a blur at the beginning and very hard to comprehend for sure. I know it's hard to believe but it does get better (did for me). I don't mean the physical stuff, but the concerns, fear of the unknown etc. 

I was 51 when I got diagnosed (November 2022) and thinking back to how I was at the beginning is chalk and cheese. 

You can click on my profile to see my journey so far. Many poster's have their stories on their profiles, if nothing else it's a quick reference etc.

There are experienced and lovely people on this forum and they helped me for sure.

Anyhow I wish you all the best.

Kindest Regards

Trevor