Hi lovely folks
I finally chased down my support nurses and they were very apologetic as they didn't know I existed ! Normally they said I would be introduced to them after the cytoscopy had confirmed a growth. Anyway they were nice and told me the MRI showed a 20mm lesion and no other signs outside of the bladder. I was very surprised having seen the consultants cytoscopy letter saying a 6cm TCC. The nurse explained that what the consultant was seeing was the lesion but also inflammation and that's why they do the MRI and other scans to get a better understanding. I'm afraid I got her to double check it was my MRI but she confirmed all my details and read me the brief radiologists notes. So that's some better news at least. It's a strange world where a 2cm cancer of unknown aggression and penetration is better news ! I had my pre op assessment yesterday afternoon which was pretty thorough, found myself very nervous about it not sure why. Also a brief chat with a private counsellor who I'll be continuing with for at least the next month or so. I had hoped to sleep better and feel refreshed this morning and whilst it wasn't my worst night I feel exhausted this morning and to be honest plain flat and ill. My CT scan is tomorrow at 7.30pm, can't fault my hospital for trying to get the tests done.
I guess what I'm feeling this morning is all part of the roller coaster of our journey ?
Best wishes to you all
