Hi 
I've finally received my diagnosis & my World has shattered into a million little pieces. Nothing makes sense to me anymore, it's as though all my previous knowledge (gained in Nursing) has evacuated my brain and left me with absolutely nothing to draw from.
I had my TURBT on 5.1.2024, the surgeon that I spoke to after stated that he had removed as much as he could-and that he couldn't tell if the tumours had become muscle invasive. I received a phone call at 5.30pm this Monday requesting that I attended an appointment with my urologist at 9am the next day!
I have still not returned to planet earth...I feel as though I'm trapped in some crazy ethereal alternative plane.
My diagnosis plus treatment plan is "large anterior and bladder neck tumour. G3 High Grade T2 TCC of the bladder with glandular differentiation and CIS". Treatment: "Radical cystectomy plus hysterectomy plus bilateral salpingo oophorectomy plus ileal conduit".
I have just about grasped that this is not good news-My surgery is booked in for 14th February...Happy Valentines Day babe!
I still haven't heard from my Cancer Nurse Specialist, I've left a couple of messages on the ansaphone but nothing in return yet? I just cannot take anything in & I feel like I need someone who knows what they're talking about, taking me 'in' & somehow calming down this ball of raging chaos that is, for now, me!!
Has anyone else experienced anything like this? Or had this diagnosis??
Many of you on here were so supportive of my first couple of posts & I'd like to thank you for that, got me thru' the waiting 4 results game!
Sorry this is all over the place, I just needed to seek some sense of sanity or control.
Thank you for your time x
All my love, Helen
