Redness to the bladder

Hi Julie1812,Red patches are quite common and don’t always mean cancer.You can get them with infections and inflammation as well.I had Interstitial cystitis for many years before cancer and got them.They were always biopsied.I hope you get your cystoscopy soon.Best wishes Jane x

Thank you for reassurance Jane x

Hi, my Oh has had red patches twice since BCG and Mitomycin cleared the cancer that he had. Both times turned out to be just that , red patches. They did flexis more often, 3 monthly instead of six monthly, for a while. Hoping it's the same with you.

Thank you Denby, date through now for flexi, not long to wait, 23rd Jan 

Good to hear you have a date.I hope all goes well.Love Jane x

Hi, after an anxious wait for flexi cystoscopy, the screen was totally blurred, consultant or myself couldn’t see it was like fog, consultant asked nurse to get it in focus, nurse said not allowed to touch the screen that's for tech to deal with, consultant took the camera out and said carry on with bcg, cancer nurses will be in touch, I was so deflated as I knew he couldn’t see if the redness had gone, he knew the previous cystoscopy had flagged changes, I contacted my cancer nurse and explained everything and that I wasn’t happy, she was lovely and investigated, came back to me several days later and said she had spoken to the consultant and that he was happy with what he had seen, I said well he couldn’t see anything, the nurse was lovely and understanding, she said she is the go between, I’ve requested a repeat cystoscopy consultant doesn’t want to do it, nurse is pushing for it with higher consultant, I’ll be the first to feel relieved if there is no redness, why should I take the chance, the consultant who seemed to have no interest, am I wrong for requesting a repeat cystoscopy x

Good morning Julie1812. I would have thought that the main point of a cystectomy would be to see what is going on . Not seeing would be a perfectly good reason for having a repeat procedure . I recall on one occasion there appeared to be lots of debris floating about that it was difficult to see what was going on in the bladder but usually I’ve had a front row seat with a good view., best wishes, John.

Hi julia, i think you are perfectly within your rights to ask for another. Sometimes the CSN do them at my urology clinic.

I recently politely requested a change of consultant because i wasnt happy that they were planning to monitor me ! My request was granted.

good luck and hope it is sorted soon 

much love Angela x

Hi Julie1812,I hope you can get a repeat done.It doesn’t sound satisfactory if there was an issue with the equipment.Love Jane xx

Mine are always done by the CNS, I have just had one today and all clear for another three months, just the CT scan tomorrow now.