Hi, I've completed 6 cycles of chemo for my bladder cancer and last two scans have shown no visible cancer. I am now about to start radiotherapy in January (20 treatments)
The consultant I spoke to last week "offered" extra chemo at the beginning and end of my treatment, consisting of a PICC being fitted and chemo being injected followed by 4days of wearing a pump and carrying the chemo treatment while it is slowly pumped into me. Apparently, it is intended to enhance the action of the radiotherapy with no guarantees that it will make a difference or stop the cancer recurring etc etc. I do not want this chemo but feel I am being guilt tripped into it as my husband obviously wants me to do everything to get the best result and is disappointed that I am "not keen" to have it. My original chemo , or the side effects, was very unpleasant with extreme nausea , fatigue and not able to eat or drink properly for example.
The consultant sent me home with the consent form, which she had signed and today I have received a letter with the dates for the PICC fitting and first chemo. While I understand it is probably to hold the dates , I do feel very pressured and upset. The chemo is not to treat the cancer per se but to slightly improve the effectiveness of the radiotherapy.
I'm feeling very torn about this.
Hi Tykico . I had this treatment. I had a chemo pump on weeks 1 and 4 and the chemo didn't really have any effect on me. Usually a cocktail of Mytomycin and 5FU. It is infused slowly over a long period and doesn't have the same effect as the one day big chemo hits. PICC line is painless going in and most of the time it is taped up. It needs to be flushed once a week but this is also painless. The chemo pump is fixed when in use and cannot be taken off. More of a nuisance than anything else but as you say it helps the RT to work better. My treatment was ten years ago and so far so good. Happy to answer any questions. Best wishes.
My OH is receiving IV antibiotics for six weeks for the second time this year. The 'pump' used is actually an elastomeric infusor. This is a stretchy balloon full of liquid medication contained in a clear rigid plastic cylinder, about the size of a modest drinks can. It comes with a discreet zip cylindrical bag with belt clip and optional neckstrap. One nurse [they change it daily at home] found him a plastic bag type elasticated sleeve which allows him to shower. So if you were to accept the chemo and it is actually one of these infusors, it is not bad to live with. Perhaps it's worth checking what you are being offered. Happy to answer any more details on this,
Denby
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007